“Using online communities to promote active participation, aggregate and share real and deep knowledge about their diseases, e-patients are transforming the quality of care other patients can expect to receive, even extending current science by driving research. This is the deliberative model of patient-doctor relationship, conceptualized by the President’s health care reform special advisor, Dr. Ezekiel Emmanuel. At least for the e-patients suffering from rare diseases this model works only when both the patients and the doctors “embrace knowledge symmetry” as Danny Sands told the audience at the 2008 Connected Health Symposium.”
Article
Gilles Frydman, e-patients.net, 6 May 2009
