“There are a million stories in the naked city when it comes to personal health information…many of which end up very badly.
At the very point in our lives when when we’re fighting for our life, or for the life or ‘good death’ of our loved one, we too-often find ourselves also fighting to access our health data. This absurd, appalling scenario steals a basic right away from health citizens: our ability to fully participate in our own health decisions and care.”
Article
Jane Sarasohn-Kahn, Health Populi, 23 June 2009
