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13
February, 2012
Monday

Some Thoughts, and a Question, on the Declaration of Health Data Rights

“23andMe’s “research revolution” involves, as they wrote, getting people to contribute their genomic and other data to research projects, and using the aggregated data to drive new research and innovation, which will likely be the next frontier in privacy and data ownership debates. Which is not a criticism of the declaration–again, I personally think this is a great first step toward giving people more control over their personal health information. But in the long-run, I expect much larger and trickier questions to center on questions about control over the products and innovations built on top of aggregated patient data.”

Article
Bradley Kreit, Health Horizons, 26 June 2009

27 June 2009 | Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Genetic Data, Ownership
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