“The U.S. Department of Health and Human Services (HHS) is about to rule whether health care entities will need to notify patients if their de-identified data — patient data that has been stripped of all potential for identifying individuals, which is often used for research and development — is breached. As it stands now, de-identified data is not subject to the new breach-notification rules imposed by the HITECH privacy provisions of the 2009 American Recovery and Reinvestment Act (ARRA) stimulus package. The debate pits privacy activists on the one side — who often support notification — with health care organizations on the other, which say the quality of health care hangs in the balance.”
Article
Jay Cline, Computerworld, 24 July 2009

