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23
February, 2012
Thursday

Research Trove: Patients’ Online Data

“After Amy Farber learned she had the rare and fatal disease called LAM in 2005, she became determined to increase and speed up research into her illness with the hope of finding a cure in her lifetime.
Dr. Farber, now 39, was a law student with a doctorate in anthropology who was about to start a family. She quit law school and founded the LAM Treatment Alliance to raise money and connect a network of scientists around the world to research this mysterious disease, which destroys young women’s lungs.”

Article
Sarah Arnquist, The New York Times, 24 August 2009

25 August 2009 | Categories: News | Country: United States | Tag(s): Data Sharing, Internet, Orphan Disease, Research, Secondary Data Use
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