“Since the Internet’s earliest days, patients have used the Web to share experiences and learn about diseases and treatments. But now [advocates say] online communities have the potential to transform medical research,” the New York Times reports. The latest development was spurred in part by patient groups like the LAM Treatment Alliance, which hopes to speed research on the fatal respiratory disease that afflicts young women. The group created “LAMsight, a Web site that allows patients to report information about their health, then turns those reports into databases that can be mined for observations about the disease.”
Article
Medical News Today, 26 August 2009
