“Social media tools facilitate the development of self-help and support groups. These networks of support can bring people with rare diseases together or towards a new tailored treatment modality. In the clinical-research arena, the recruitment of patients for a clinical trial would be much easier and effective with these tools than an ad in your local newspaper or an NIH sponsored website. Ease of accessibility is a tremendous and not to be taken for granted potential of these technologies. Think of twitter as your digital bulletin board outside your office, but in the case of a social media outlet, your bulletin board is reaching many more offices and at times the world at large. But besides the ability to reach a wider audience and fast, social media tools foster innovative ways of interacting with others.”
Article
Gonzalo Bacigalupe, CFHA, 22 December 2009
