“Dave deBronkart’s TED talk inspired me. I went on a “damn data” collection mission by ordering data from all the places where my Crohn’s disease had caught up to me. I ordered medical records, medical bills, insurance information, and pharmacy data. It’s a collection worth about 13 years, 600 pages, and came from nearly 20 sources. Impressive, no? But it’s not having the data that’s important, it’s what you do with it that matters.”
Article
Ken Spriggs, e-patients.net, 21/25 November 2011
My friend e-patient Dave sent me the following tweet: “I imagine this e-patient-created infographic qualifies as compunetics, eh?? bit.ly/uTN8aq”. It certainly does. It explains in a very comprehensive and accessible way many aspects of the ethical, societal and social aspects of the use of ICT (compunetics) especially for the patient, as always has been our starting point as ICMCC.
When we started in 2004 with a strong emphasis on EHRs and record access I would never had dreamed that these kind of results would and could be a consequence.
Thank you Dave for showing it to me!!