ICMCC

the international council on medical & care compunetics

news page

28
July, 2014
Monday

Giving Patients Granular Control of Personal Health Information: Using an Ethics ‘Points to Consider’ to Inform Informatics System Designers

Objective
There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and system developers must balance these benefits and risks. Ethical considerations should be an explicit part of this balancing. Our objective was to develop a structured ethics framework to accomplish this.

Methods
We reviewed existing literature on the ethical and policy issues, developed an ethics framework called a “Points to Consider” (P2C) document, and convened a national expert panel to review and critique the P2C.

Results
We developed the P2C to aid informaticists designing an advanced query tool for an electronic health record (EHR) system in Indianapolis. The P2C consists of six questions (“Points”) that frame important ethical issues, apply accepted principles of bioethics and Fair Information Practices, comment on how questions might be answered, and address implications for patient care.

Discussion
The P2C is intended to clarify what is at stake when designers try to accommodate potentially competing ethical commitments and logistical realities. The P2C was developed to guide informaticists who were designing a query tool in an existing EHR that would permit patient granular control. While consideration of ethical issues is coming to the forefront of medical informatics design and development practices, more reflection is needed to facilitate optimal collaboration between designers and ethicists. This report contributes to that discussion.

Full article
Meslin, Eric M.; Alpert, Sheri; Carroll, Aaron E.; Odell, Jere D.; Tierney, William M.; Schwartz, Peter H., International Journal of Medical Informatics, In Press, Accepted Manuscript, DOI: 10.1016/j.ijmedinf.2013.08.010

More bibliographic information.

11 September 2013 | Categories: Patients, RA Research, Science | Country: United States | EHR: EHR, EHR USA | Tag(s): Benefits, Design, Personal Health Information, Risks
You can leave a response, or trackback from your own site.
If you appreciate our news pages, don't forget to subscribe or try the NEW ICMCC toolbar!

Leave a Reply

Back to News Page

subscribe

ICMCC is member of

IFMBE

WABT

© ICMCC 2004-2011

Log in