Patients
Li YC et al, Yearbook of Medical Informatics, 2009(1)
OBJECTIVE
Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use.
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29 January 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: Access, Patient, phr
Haggstrom DA et al, J Am Med Inform Assoc, 18 Suppl 1
In order to create user-centered design information to guide the development of personal health records (PHRs), 24 patients participated in usability assessments of VA’s MyHealtheVet program. Observational videos and efficiency measures were collected among users performing four PHR scenarios: registration and log-in, prescription refill, tracking health, and searching for health information. Twenty-five percent of users successfully completed registration. Individuals preferred prescription numbers over names, sometimes due to privacy concerns.
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6 January 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Patient, phr, Usability
Walker J et al, Annals of Internal Medicine, 155(12)
Background:
Little is known about what primary care physicians (PCPs) and patients would expect if patients were invited to read their doctors’ office notes.
Objective:
To explore attitudes toward potential benefits or harms if PCPs offered patients ready access to visit notes.
Design:
he PCPs and patients completed surveys before joining a voluntary program that provided electronic links to doctors’ notes.
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20 December 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | Tags: Access, Notes, Patient, Primary Care
Kim J, Bates DW. J Med Internet Res, 13(4)
BACKGROUND
Personal health records (PHRs) remain a relatively new technology and concept in practice even though they have been discussed in the literature for more than 50 years. There is no consensus on the definition of a PHR or PHR system even within the professional societies of health information technology.
OBJECTIVE
Our objective was to analyze and classify the opinions of health information professionals regarding the definitions of the PHR.
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1 December 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: phr
Beard L et al, J Am Med Inform Assoc, 19(1)
It is becoming increasingly apparent that there is a tension between growing consumer demands for access to information and a healthcare system that may not be prepared to meet these demands. Designing an effective solution for this problem will require a thorough understanding of the barriers that now stand in the way of giving patients electronic access to their health data.
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27 November 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Tags: Access, Patient
Collins SA et al, J Am Med Inform Assoc, 2011
Objective
Healthcare delivery organizations are increasingly using online personal health records (PHRs) to provide patients with direct access to their clinical information; however, there may be a lack of consistency in the data made available. We aimed to understand the general use and functionality of PHRs and the organizational policies and decision-making structures for making data available to patients.
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13 September 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Patient, phr
Urowitz S et al, BMC Medical Informatics and Decision Making, 8
BACKGROUND
Access to personal health information through the electronic health record (EHR) is an innovative means to enable people to be active participants in their own health care. Currently this is not an available option for consumers of health. The absence of a key technology, the EHR, is a significant obstacle to providing patient accessible electronic records. To assess the readiness for the implementation and adoption of EHRs in Canada, a national scan was conducted to determine organizational readiness and willingness for patient accessible electronic records.
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21 August 2011 | No Comments »
Categories: Patients, Record Access, Science | Country: Canada | EHR: EHR, EHR Canada | Tags: Access, Patient
Gravis G et al, Cancer, 2011
BACKGROUND:
Information is crucial for increasing the patients’ empowerment and autonomy in relevant decision‐making processes, especially in malignant diseases. However, the extent to which information should be delivered is debated. The objective of this study was to assess the impact of providing systematic full access (SFA) to the medical record on anxiety, quality of life, and satisfaction.
METHODS:
Patients with newly diagnosed breast cancer, colon cancer, or lymphoma who had received adjuvant chemotherapy in an outpatient setting were included in a randomized controlled trial comparing those who requested access (RA) and those who provided SFA to the medical record. Anxiety was assessed using the Spielberger State‐Trait Anxiety Inventory before, during, and at the end of treatment. Quality of life was evaluated using the European Organization for Research and Cancer quality‐of‐life questionnaire (EORTC QLQ‐C30) before and at the end of treatment. Patients’ satisfaction and perception of the organized medical record (OMR) were evaluated using a specifically designed questionnaire at the end of treatment.
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24 May 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: France | EHR: EHR, EHR France | Tags: Access, emr, Oncology, Patient, Satisfaction
Bhavnani V et al, Family Practice, 28(2)
BACKGROUND
Record access is likely to become an integral part of routine care in the UK. While existing research suggests that record access improves self-care and improves relationships between patients and clinicians, little is known about how patients make use of their ability to access their records or the impact that this has on health behaviour.
AIM
To explore patients’ use of access to their electronic GP record and the impact of that process on their health behaviour.
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28 March 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Access, Behaviour, GP, Patient
Brown I et al,
This article analyses the legality of the use of electronic patient records in the NHS for research without explicit patient consent under UK and EU law, with particular reference to the adequacy of the information provided to patients and the increasing difficulties of achieving de-identification. In section II, we describe the main NHS databases used for medical research purposes in England and the transparency of this use, and the general problem of re-identification.
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14 March 2011 | No Comments »
Categories: Patients, RA News, RA Research, Record Access, Science | Country: UK | EHR: EHR, EHR UK | Tags: Confidentiality, Consent, De-identification, emr, Privacy, Research, Secondary Data Use
Wen K et al, J Med Internet Res, 12(4)
Background:
Personal health records (PHRs) and the sharing of health information through health information exchange (HIE) have been advocated as key new components in the effective delivery of modern health care. It is important to understand consumer attitudes toward utilization of PHRs and HIE to evaluate the public’s willingness to adopt these new health care tools.
Objective:
The purpose of this study was to examine consumer attitudes toward PHRs and their health care providers’ use of HIE, as well as to evaluate consumer use of the Internet for tracking PHRs.
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13 February 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: Country, United States | EHR: EHR, EHR USA | Tags: Access, Health Information Exchange, Internet, Patient, phr
Turner AN et al, BMJ, 341
In the same population as Greenhalgh and colleagues report an unimpressive response to HealthSpace, more than 11 000 UK renal patients are active users of an online system Renal PatientView (www.renalpatientview.org; www.renal.org/rpv), which allows them to see live unscreened test results, with information about their diagnosis and treatment, and in many centres also clinic letters.
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28 January 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | Tags: Access, Patient, phr
Greenhalgh T et al, BMJ, 341(nov16 1)
Objective
To evaluate the policy making process, implementation by NHS organisations, and patients’ and carers’ experiences of efforts to introduce an internet accessible personal electronic health record (HealthSpace) in a public sector healthcare system.
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18 November 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Adoption, phr, Portal, Web
Cross M. BMJ, 341:c5913
Patients in England will be able to inspect and correct their NHS and social care records online from 2015 if the coalition government’s vision for the use of IT in the NHS becomes reality.
A strategy paper published on 18 October for consultation says that giving patients control of their records “opens up exciting new possibilities for online health and care services.” However, it is likely to generate new concerns about confidentiality, security, and consent.
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24 October 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Confidentiality, Consent, Security
Bourgeois FT et al, J Med Internet Res, 10(1)
Background:
Personally controlled health records (PCHRs) are accessible over the Internet and allow individuals to maintain and manage a secure copy of their medical data. These records provide a new opportunity to provide customized health recommendations to individuals based on their record content. Health promotion programs using PCHRs can potentially be used in a variety of settings and target a large range of health issues.
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6 October 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Internet, phr
Wiljer D et al, BMC Medical Informatics and Decision Making, 10(1)
Background
Personal health records (PHRs) provide patients with access to personal health information (PHI) and targeted education. The use of PHRs has the potential to improve a wide range of outcomes, including empowering patients to be more active participants in their care. There are a number of widespread barriers to adoption, including privacy and security considerations. In addition, there are clinical concerns that patients could become anxious or distressed when accessing complex medical information. This study assesses the implementation of a PHR, and its impact on anxiety levels and perceptions of self-efficacy in a sample of breast cancer patients.
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2 September 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: Canada | EHR: EHR, EHR Canada | Tags: Access, Oncology, phr
Tiik M. Medical and Care Compunetics 6, 2010
There should be a clear understanding that when implementing an electronic health record system (EHR), one of the hardest problems we have to solve is the access rights. In Estonia this process lasted for three years and involved all stakeholders of the healthcare sector. Special ethical committee was established to advise the decision makers and doctors to help them understand the ethical dilemmas from the patient’s and society’s point of view.
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20 June 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: Estonia | EHR: EHR, EHR Estonia | Tags: Access, Patient
Tiik M, Ross P. Medical and Care Compunetics 6, 2010
Estonia is the first country which has implemented a nationwide electronic health record system and gives full access to its citizens. This provides new opportunities to citizens, healthcare providers and e-health developers.
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20 June 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: Estonia | EHR: EHR, EHR Estonia | Tags: Access, Empowerment, Patient, Portal
Cardoso AB et al, 2005
Background:
Nowadays, the access to the patient medical records is becoming easier. The developments in information technologies makes fairly common for patients to review and amend their medical records routinely.
Aim:
Analyze the potential benefits and drawbacks of providing adult patients access to the information within their medical records, in terms of patient attitudes, doctor-patient relationship and on medical practice, by reviewing previously published research.
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16 June 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: emr
McLaren P. BMJ, 303(6808)
Patients have had access to their computerised medical records since 1984 and from next month will have access to their written records as well.
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16 June 2010 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: UK | EHR: EHR | Tags: emr
