e-patient
Winston ER et al, Computers in Human Behavior, 2012
Decreasing revenues and increasing expenses has led many healthcare organizations to adopt newer technological applications in order to address the informational needs of their patients. One such adoption technique is to develop a more robust e-patient environment. Health care organizations may increase their effectiveness in meeting the needs of a growing e-patient population through the implementation of high-quality social networking applications such as Twitter. These applications may help to support and maintain a valuable and informed community.
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6 February 2012 | No Comments »
Categories: Science | Tag(s): e-patient, Information Management, Online Communities, social-network, Twitter
Stead Burwell, MedGadget
“Studies show online support groups foster positive health outcomes, including escalating good, healthy habits. People are much more likely to achieve their health goals when paired-up with others who have similar goals. Healthy habits, such as eating right, sharing best practices and exercising, can truly go viral if the proper networks are established for the right information to be passed on.
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31 January 2012 | No Comments »
Categories: News | Country: United States | Tag(s): Connected Health, e-patient, Health Information, social-network
e-Patient Dave, e-patients.net
“We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.”
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22 January 2012 | No Comments »
Categories: News, Video | Country: United States | Tag(s): Cardiology, Data, Devices, e-patient, Implants
Fred Trotter, O'Reilly Radr
“I help build open source software tools that patients can use to have greater control and influence over their own healthcare (like the Direct Project and Your Doctors Advice). As as result, I’ve become quite familiar with other tools that do the same sorts of things. There is a community of patients who are deeply interested in the ways in which they can become more engaged and how they can specifically use technology to achieve this. This community calls themselves epatients. The epatient community asked me to write a short collection of resources for “becoming an epatient.”
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6 January 2012 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient
e-Patient Dave, e-patients.net
“What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data. (CDs didn’t come with software; in a few hours with Twitter help she’d downloaded OsiriX and was pushing her way through it.)
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23 December 2011 | No Comments »
Categories: News, RA News, Record Access | Country: United States | Tag(s): e-patient, Oncology
Jennifer Dennard, Healthcare IT News
“I recently got a pleasant healthcare surprise while listening to one of my favorite radio stations here in Atlanta. In between some really good jazz tunes, Clark Atlanta University’s WCLK radio station played what to me seemed like a public service announcement from Medicare.
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22 November 2011 | 1 Comment »
Categories: News | Country: United States | Tag(s): e-patient, Education, Empowerment
le monde de la e-santé
“Internet a dans le domaine de la santé, trouvé toute son efficacité, auprès de ceux qui au départ n’avaient pas ou peu de moyens de s’informer sur un traitement, des symptômes, ou plus généralement concernant l’actualité médicale.
Par le biais des espaces de discussions que peuvent être les forums ou les blogs, le web et vite devenu le « compagnon » du grand public pour les questions de santé.
En effet, 7 jours sur 7, 24 heures sur 24, il permet à chacun de répondre à un manque d’information, à une inquiétude liée à l’accompagnement d’un proche, ou même pour trouver quelque réconfort face à une maladie.
Puis de la recherche d’information, on est vite passé au besoin de s’exprimer, d’échanger ses craintes et ses espoirs, voir ses opinions sur les traitements prescrits et les diagnostics.”
Article (French)
le monde de la e-santé, 18 November 2011
20 November 2011 | No Comments »
Categories: News | Country: France | Tag(s): e-patient, Health Information, Physician-Patient Relationship, Web
Fred Trotter
“Over on the Society for Participatory Medicine mailing list we have been discussing the recent Readers Digest blog post titled: 50 things your nurse wont tell you.
You really have to read it before reading this article, this post will only make so much sense without that.
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10 November 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient
Apiscam
“Jesús Galván, viceconsejero de Sanidad y Asuntos Sociales de Castilla-La Mancha, se pregunta: “¿La telemedicina debe incrementar la autonomía del paciente en su autocuidado o tan sólo trasladar a distancia el viejo rol del profesional sanitario?”.
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8 November 2011 | No Comments »
Categories: News | Country: Spain | Tag(s): e-patient, Telemedicine
Michael Martineau, Technology for Doctors Online
“Earlier this summer I wrote a column on eHealth trends in which I identified the “Engaged Patient” as one of three significant trends to watch.
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28 October 2011 | No Comments »
Categories: News | Country: Canada | Tag(s): e-patient, Education, Engagement, Self Management
PRSalud
“‘Nos encontramos ante un nuevo tipo de paciente que requiere más información sobre lo que está pasando y sobre su proceso’, asegura Elena Escala (@meriti), redactora jefe de Diario Médico.
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7 October 2011 | No Comments »
Categories: News | Country: Spain | Tag(s): e-patient, Health Information, Information Sharing
John Sharp, e-patients.net
“Query Health” may sound like a consumer health information tool, but it’s not. Announced this week (GovHealthIT story) by the Office of the National Coordinator for Health IT (ONC), it’s a new initiative which plans to make clinical information available to researchers nationally, to study population health. The project charter is here.
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11 September 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): e-patient, Research
Natalie Morrison, Outsourcing-pharma
“Blue Chip Patient Recruitment says the future of patient sourcing for clinical trials lies in social media.
The patient recruitment specialist surveyed 179 adults – all actively engaged members of health-related social media networks above the age of 18 – from February to April.
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26 July 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Online Communities, Research, social-network
h2onlinehu
“Social media could be a great staring point for clinical trials. According to a study carried out by Blue Chip Patient Recruitment, e-patients who are active social media users are 60% more likely to have participated in clinical trials.
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5 July 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Lifestyle, Online Communities, Social Media
Melody Smith Jones, Healthcare IT Solutions
“Sometimes when I write about social media in healthcare I imagine a make-believe healthcare technology purist that I’ve conjured up rolling her eyes at me. She scoffs at my adding to the zettabytes of digital data on one of the more “softball” technology topics. What does social media have to do with “real” healthcare technology anyway? I should be using alpha-numeric acronyms and drawing IT diagrams with lots of arrows of varying size. This is healthcare technology, after all. There are more important things to write about than social media, right?
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24 June 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Social Media
Nicole Lewis, InformationWeek Healthcare
“An e-patient consent system will soon become reality if the Office of the National Coordinator for Health Information Technology (ONC) has its way.
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29 April 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Consent, e-patient, Health Information Exchange
TEDxMaastricht
“Dave deBronkart, or better known as “e-Patient Dave” (@epatientdave) was diagnosed in January 2007 with kidney cancer at a very late stage. odds were stacked against him; with tumors in both lungs, several bones, and muscle tissue. He received great treatment and after removing the extensive mess, and by means of therapy was able to fight through and win the battle over his cancer. His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. Dave is now actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient.”
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11 April 2011 | No Comments »
Categories: News, Video | Tag(s): e-patient, Empowerment, Online Communities
Kelly Young, RA Warrior
“That story happened to me. That’s why I loved that Tweet from Kelly Kunik during last night’s Twitter HCSM (Healthcare communications social media) discussion. A doctor had questioned whether e-patient bloggers are credible sources.
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22 March 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Health Information, Narrative, Reliability, Social Media
Patient organizations aim to improve the quality of life for people and their families who are affected by certain health conditions. Even though there has been a sharp rise in the demands on health systems during the last few decades, these systems have benefited from technological advances and the increasingly active role of users in managing their own health. The authors look at the evolution of patient associations into virtual health communities as a logical step in the development of communities of patients, families, and professionals who benefit from Web 2.0, and how it meets their needs regarding obtaining and sharing information, social support, and building relationships.
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16 January 2011 | No Comments »
Categories: Science | Tag(s): Community, e-patient, Internet, participatory
Denise Silber's Blog
“Selon la nouvelle synthèse de Susannah Fox (Pew Foundation) portant sur les patients atteints du cancer voire de maladies chroniques en général, les études confirment les points suivants.”
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14 December 2010 | No Comments »
Categories: News | Tag(s): e-patient, Engagement, Oncology, Patient, Web 2.0