Paul Cerrato, InformationWeek
“Have you ever read something that sent chills up your spine? An old ad from Apple did it for me.
“Here’s to the crazy ones. The misfits. The rebels. The troublemakers. The round pegs in the square holes… While some see them as the crazy ones, we see genius… Because the people who are crazy enough to think they can change the world are the ones who do.”
[ More ]
Evan Duggan, Vancouver Sun
“The federal government’s tough on crime agenda and better-than-ever genetic mapping technologies means more legal protections are needed to protect the privacy of Canadians, according to a report commissioned by the B.C. Civil Liberties Association.
[ More ]
David B. Agus, Wall Street Journal
“Take a moment to imagine what it would be like to live robustly to the ripe old age of 100 or more. You wouldn’t die of any particular illness, and you wouldn’t gradually waste away under the spell of some awful, enfeebling disease that began years or decades earlier.
[ More ]
Carolyn Y. Johnson, The Boston Globe
“Dana-Farber Cancer Institute and Brigham and Women’s Hospital have launched a massive study to test cancer patients’ tumors for hundreds of genetic aberrations in an effort to build a more comprehensive understanding of the underpinnings of cancer and how to tailor patients’ treatment.
[ More ]
Nicole Lewis, InformationWeek Healthcare
“As IBM pairs its technology with biomedical research, the company announced Friday that it has successfully teamed with Coriell Institute for Medical Research to provide storage hardware and data management software that supports the research of human genetic diseases.
[ More ]
Gardner E. Health Data Management Magazine, 19(6)
With meaningful use taking up all the top slots on the national EHR to-do list, record retention and preservation don’t even make the first page: Data storage is so cheap, so the popular thinking seems to be, we’ll just keep everything and worry about it later. But Milton Corn, M.D., deputy director for research and education at the National Library of Medicine, thinks we should worry about it now.
[ More ]
Gerry Higgins, HealthSystemCIO
“In some cases, the utility of patient genotyping prior to therapeutics is of unquestioned value. In non-Hodgkin’s and Mantle Cell lymphoma, DNA sequencing of the tumor provides personalized cancer vaccines that demonstrate statistically significant Phase III clinical trial results with disease-free survival benefit in treatment of these types of follicular lymphoma [1].
[ More ]
Howard Anderson, HealthcareInfoSecurity.com
“A CIO involved in an ambitious personalized medicine project that uses genetic information describes how privacy issues are addressed.
[ More ]
Patty Enrado, EHRWatch
“Northwestern Medicine researchers were able to mine data from EMRs at five national sites and accurately identify patients with five specific diseases, which greatly speeds the formation of a large pool of patients for genetic studies. Their findings were published in Science Translational Medicine.
[ More ]
Ryan McBride, FierceBiotech IT
“With the U.S. rapidly adopting electronic health records, there’s a big opportunity to use data from the records to aid in disease research. Researchers at Northwestern University showed that tapping electronic medical records provides a way to rapidly and cheaply identify patients with specific diseases for genetic studies.
[ More ]
Medical Daily
“Recruiting thousands of patients to collect health data for genetic clues to disease is expensive and time consuming. But that arduous process of collecting data for genetic studies could be faster and cheaper by instead mining patient data that already exists in electronic medical records, according to new Northwestern Medicine research.
[ More ]
CMIO
“Extracting patient data that already exists in EMRs could expedite the process of collecting data for genetic studies, according to “Electronic Medical Records for Genetic Research: Results of the eMERGE Consortium,” a study published in Science Translational Medicine.
[ More ]
Vince Kuraitis, e-CareManagement
“By now most people understand the promise of pharmaceuticals being customized to “YOU” based on your individual genetic code. While this isn’t prevalent today, we understand that this will be possible in a few years.
[ More ]
Ben Dillon, Geonetric
“We’ve known for a few months now that the era of “Adult supervision” is over at Google and co-founder Larry Page is taking over the CEO role from Eric Schmidt. The expectation is that Page will work to make the firm, now weighing in at some 24,000 employees, more nimble and startup-like. The resulting reorganization may result in cuts to projects that he sees as unsuccessful, including Google Health.
[ More ]
Salem RM et al, Health Informatics Journal, 16(4)
The Veterans Affairs Hypertension Primary Care Longitudinal Cohort (VAHC) was initiated in 2003 as a pilot study designed to link the VA electronic medical record system with individual genetic data. Between June 2003 and December 2004, 1,527 hypertensive participants were recruited. Protected health information (PHI) was extracted from the regional VA data warehouse. Differences between the clinic and mail recruits suggested that clinic recruitment resulted in an over-sampling of African Americans.
[ More ]
EMR Daily News
“A new study reveals an exciting potential benefit of the rapidly accumulating databases of health care information, the ability to make unprecedented links between genomic data and clinical medicine.
[ More ]
Gerry Higgins, HealthsystemCIO.com
“It’s not just genomic scientists that are dealing with enormous amounts of DNA sequence data – the clinician will soon be next. However, the explosion in linking disease with genetics, and the realization that the FDA will require gene testing prior to the prescription of potentially hundreds of drugs, will challenge the storage capacity required for clinical data.
[ More ]
Sarah Bruce, e-Health Europe
“Health Level Seven, the global interoperability standards body for healthcare IT, has announced that its messaging standard has successfully coded genetic test results from a lab and transmitted them to an electronic health record for the first time.
[ More ]
Government Health IT
HHS rules on protecting genetic data
The Health and Human Services Department wants to prevent health plans from using or disclosing individuals’ genetic information. HHS proposed changes Oct. 1 to the Health Insurance Portability and Accountability Act (HIPAA) to prohibit such practices and to clarify that genetic information is protected health data.
[ More ]
Bradley Kreit, Health Horizons
“23andMe’s “research revolution” involves, as they wrote, getting people to contribute their genomic and other data to research projects, and using the aggregated data to drive new research and innovation, which will likely be the next frontier in privacy and data ownership debates.
[ More ]
