Marianne Kolbasuk McGee, InformationWeek Healthcare
“Sticking with New Year’s resolutions is still top of mind for many folks. No doubt many are looking to the new smartphones, iPads, and health-related apps that Santa delivered to help fulfill those resolutions. So could 2012 be the year of tech-enabled patient engagement?
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Anoshiravani A et al, Journal of Participatory Medicine, 3
This paper describes the development of an innovative health information technology creating a bidirectional link between the electronic medical record (EMR) of an academic children’s hospital and a commercially available, interoperable personal health record (PHR). The goal of the PHR project has been to empower pediatric patients and their families to play a more active role in understanding, accessing, maintaining, and sharing their personal health information to ultimately improve health outcomes.
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Matthew Lee, Project HealthDesign
“One of the many reasons observations of daily living (ODLs) are interesting is because people don’t normally pay much attention to them as they live their everyday lives. If ODLs easily lent themselves to simple mental accounting, we would not need special sensors or mobile applications to log them.
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Carolyn Bloch, Federal Telemedicine News
“Workers on the job are at risk for illnesses and injuries because of long hours, changing shifts, lifting and repetitive tasks, stress on the job, and exposure to infectious diseases and hazardous chemicals. Because of the many work-related health factors that exist, the National Institute for Occupational Safety and Health (NIOSH) and the Institute of Medicine (IOM) are conducting a study to examine the rationale and feasibility of incorporating work history information into patient EHRs by 2015.
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Tim Patton, Project HealthDesign
“People might not be willing to share all of their observations of daily living (ODLs). This may be old news to health care providers, but it was a bit of a surprise to the engineers among us as we looked for information to help us design systems that support patients’ real needs in regard to personal health management, decision-making and monitoring behaviors.
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Shadeequa “Dee” Miller, Project HealthDesign
“Online communities are increasingly being used for health information purposes and social support — especially among adults who have been diagnosed with chronic diseases. In fact, online communities have been found to have a positive effect on participants’ well-being and health care behaviors (Nimrod, 2009).
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Barbara L. Massoudi, Murrey G. Olmsted, Project HealthDesign
“For patients using our smartphone application for collecting and tracking ODLs, lately the team has been wrestling with the question of how long to run the intervention.
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rteston, Buzz e-sante
“L’association Asthme et Allergies lance une nouvelle plateforme interactive pour permettre aux patients et à leur entourage de s’exprimer sur les différents aspects de la maladie.
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Brennan PF et al, Journal of Biomedical Informatics, 43(5 S1)
Project HealthDesign, a multi-year, multi-site project sponsored by the Robert Wood Johnson Foundation with additional support from the California HealthCare Foundation, is designed to stimulate innovation in personal health records (PHRs). Project HealthDesign teams employed user-centered design processes to create designs and prototypes of computer-based applications to support and enhance human health for a wide range of patients, from children with chronic health conditions to elders transitioning from hospital to home.
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David Ellis and Stephen J. Cavanagh, H&HN
“The personal health record (PHR) is an individual’s health record accessible to, nominally controlled by, and to some extent maintained by that individual. Recently, these records have begun to include elements of clinical information from the databases and electronic medical records (EMRs) of hospitals, physician offices, health plans, pharmacies and other health care service providers.
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Patricia Flatley Brennan, Project HealthDesign
“Last month, Sheba George, medical sociologist from the FitBaby project, offered up some important insights about ODLs as they relate to caring for high-risk babies.
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Laura Landro, WSJ Health Blog
“To help improve care for chronic diseases and other health conditions, researchers participating in the Robert Wood Johnson Foundation’s Project HealthDesign are asking patients to use smartphones and other devices to collect data about their health — known as observations of daily living, or ODLs — between doctor visits, today’s Informed Patient column reports.
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Laura Landro, The Wall Street Journal
“Project Health Design’s teams are integrating data collected by patients into personal health records so doctors can see patterns that might alert them to a health problem.
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Anind K. Dey, Project HealthDesign
“In my research group, we are studying a field called personal informatics, in which individuals collect information about themselves, similar to the concept of observations of daily living. Some of the questions we have been investigating overlap with our study of ODLs as part of Project HealthDesign.
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Susannah Fox, e-Patients.net
“Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care.
What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)?
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Bernie Monegain, Healthcare IT News
“Researchers at Charles Drew University of Medicine and Science and UC Irvine will monitor the day-to-day health of low-birth-weight babies and their parents as part of a project designed to combat chronic illnesses associated with low-weight births.
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Carolyn Bloch, Federal Telemedicine News
“The Robert Wood Johnson Foundation (RWJF) has just selected five teams for an innovative program to explore how patient-recorded Observations of Daily Living (ODL) can be captured and integrated into clinical care. New technologies such as smart phones and sensors make it possible to gather information on diets, exercise, sleep patterns, medication usage, and pain, and then use the information to study the effects on people’s lives.
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Gilles Frydman, e-patients.net
“In a world with abundant, actionable health data – both from electronic medical records and our everyday observations – we will be empowered to make better decisions and our relationships with doctors may significantly change.”
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Brian Dolan, mobihealthnews
“Not surprisingly, Microsoft Research is investigating how to integrate mobile health projects running on Windows Mobile powered phones into the company’s personal health information platform, HealthVault. The company’s director of technology strategy for Asia, Eric Chang, told PC World in a recent interview:
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RWJF
“The purpose of this Web feature is to provide a new and enriched context for the body of work on personal health records funded by the Pioneer Portfolio and the Robert Wood Johnson Foundation. After five years of funding PHR-related work, the Pioneer Portfolio has acquired a substantial corpus of reports, podcasts, e-primers, and blog posts concerning personal heath records.
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