Online Communities
Winston ER et al, Computers in Human Behavior, 2012
Decreasing revenues and increasing expenses has led many healthcare organizations to adopt newer technological applications in order to address the informational needs of their patients. One such adoption technique is to develop a more robust e-patient environment. Health care organizations may increase their effectiveness in meeting the needs of a growing e-patient population through the implementation of high-quality social networking applications such as Twitter. These applications may help to support and maintain a valuable and informed community.
[ More ]
6 February 2012 | No Comments »
Categories: Science | Tag(s): e-patient, Information Management, Online Communities, social-network, Twitter
Mike Martineau, Technology for Doctors Online
“Physicians have often been portrayed, quite inaccurately in my view, as slow to adopt or reluctant to use information technology. While they may be hesitant to consider products or services that they do not believe will be useful in their daily activities, several recent studies show that they are embracing information technology at a pace similar to or even exceeding that of professionals in other industries.
[ More ]
29 September 2011 | No Comments »
Categories: News | Country: Canada, United States | Tag(s): Online Communities, Physicians, Social Media
Mary Modahl, Lea Tompsett, Tracey Moorhead, QuantiaMD
“Physicians are highly engaged with online networks and social media. Nearly 90% of physicians use at least one site for personal use, and over 65% for professional purposes. Overall, clinicians express significant interest in the potential applications of social media to their professions – whether via online physician communities, online patient communities or sites that could facilitate physician-patient interactions.
[ More ]
11 September 2011 | No Comments »
Categories: News, Report | Country: United States | Tag(s): Online Communities, Patient, Physicians, Social Media
fllordachs, Una de Médicos
“De un tiempo a esta parte, como si fuese algo lógico, se habla mucho del e-paciente y su empoderamiento como algo inexorable (que probablemente lo es, en base al paso del tiempo y a la modificación de los hábitos de la población en materia de conectividad y llamémosle habilidad digital). También se considera (o esa es la postura) algo sin duda cercano, de para ayer, porque los americanos, y tal, y tal… Incluso se ha puesto de acuerdo una buena parte de la blogosfera-twittesfera sanitaria española para componer a n-manos un libro de distribución gratuíta,
[ More ]
6 September 2011 | No Comments »
Categories: News | Country: Spain | Tag(s): Digital Divide, Empowerment, Health Information, Online Communities, Patient, Physicians, social-network, Usability
Linda McSweeny, MJA Insight
“Concerns have been raised about a social networking site where patients can compare symptoms and treatments even though it has the potential to become a revolutionary tool for medical research.
[ More ]
5 September 2011 | 1 Comment »
Categories: News | Tag(s): Online Communities, Social Media, social-network
Trevena LJ. The Medical Journal of Australia, 195
In 2004, Ben and Jamie Heywood launched a social networking site called PatientsLikeMe (PLM) (http://www.patientslikeme.com). They were motivated by their younger brother Stephen’s tragic journey with amyotrophic lateral sclerosis (ALS) and the desire to connect and share information with other ALS sufferers. Members of the PLM community create a profile to record and track their health over time, including quality of life, symptom control, and treatments and their efficacy and side effects. Members can also connect through online discussion, and the site has over 110 000 members with a counter on the homepage rising every few minutes.
[ More ]
5 September 2011 | No Comments »
Categories: Science | Tag(s): Online Communities, Patient, Social Media, social-network
rteston, Buzz e-sante
“L’association Asthme & Allergies a annoncé le lancement d’un site communautaire autour de l’asthme sévère : asthmatiic.org. Présentation.
[ More ]
2 September 2011 | No Comments »
Categories: News | Country: France | Tag(s): Asthma, Online Communities
Mark Ryan, iMedicalApps
“In these last few months, I have been lucky enough to discuss the use of social media with physicians in a number of settings. One of the major themes of these discussions is determining the value of social media that makes it worth adding to a physician’s day already filled with patient care, insurance, and other administrative work.
[ More ]
23 August 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Health 2.0, Online Communities, Public Health, Social Media
Azucena Santillán, EBE
“Las redes virtuales de profesionales sanitarios preocupados por las buenas practicas cada vez son más numerosas.
[ More ]
22 August 2011 | No Comments »
Categories: News | Country: Spain | Tag(s): Online Communities, Physicians, social-network
Hartzler A, Pratt W. J Med Internet Res, 13(3)
BACKGROUND
When patients need health information to manage their personal health, they turn to both health professionals and other patients. Yet, we know little about how the information exchanged among patients (ie, patient expertise) contrasts with the information offered by health professionals (ie, clinician expertise). Understanding how patients’ experiential expertise contrasts with the medical expertise of health professionals is necessary to inform the design of peer-support tools that meet patients’ needs, particularly with the growing prevalence of largely unguided advice sharing through Internet-based social software.
[ More ]
19 August 2011 | No Comments »
Categories: Science | Tag(s): Online Communities, Patient, Physicians, Social Media
Natalie Morrison, Outsourcing-pharma
“Blue Chip Patient Recruitment says the future of patient sourcing for clinical trials lies in social media.
The patient recruitment specialist surveyed 179 adults – all actively engaged members of health-related social media networks above the age of 18 – from February to April.
[ More ]
26 July 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Online Communities, Research, social-network
h2onlinehu
“Social media could be a great staring point for clinical trials. According to a study carried out by Blue Chip Patient Recruitment, e-patients who are active social media users are 60% more likely to have participated in clinical trials.
[ More ]
5 July 2011 | No Comments »
Categories: News | Country: United States | Tag(s): e-patient, Lifestyle, Online Communities, Social Media
Gene Ostrovsky, MedGadget
“PatientsLikeMe, the social network for people with medical conditions, has unveiled a new online tool for discovering clinical trials that may be relevant to an individual’s unique situation.
[ More ]
10 June 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Clinical Trials, Online Communities
Ted Eytan, MD
“Take a look, slide 19 in the deck below. I am interested in this because I think it’s possible that the integration of social media into health care will be about bringing trusted experts in with “people like yourself.”
[ More ]
23 May 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Health Information, Online Communities, Trust
Denise Silber's Blog
“Si l’intérêt des communautés de patients en ligne est désormais admis, les communautés ne sont pas identiques. La majorité de communautés en ligne en France sont proches du bon vieux forum dans leur conception. PatientsLikeMe* aux Etats-Unis avait été le premier à réussir à apporter une réelle valeur ajoutée en dépassant les échanges rendus possibles par un forum. En France, il existe depuis peu Carenity un site accueillant diverses communautés et ayant une vocation internationale à terme. Buzz e-Santé parle ici du lancement. Mais, l’offre en Europe s’étoffe régulièrement.
[ More ]
19 May 2011 | No Comments »
Categories: News | Country: France, UK, United States | Tag(s): Online Communities, Patient
iHealthBeat
“Social networking tools, when paired with the use of personal health records, can be valuable in monitoring chronic diseases, according to a study published in PLoS ONE by researchers at Children’s Hospital Boston, Healthcare IT News reports.
[ More ]
3 May 2011 | No Comments »
Categories: News | Tag(s): Chronic Diseases, Diabetes, Monitoring, Online Communities, phr, social-network
Weitzman ER et al, PLoS ONE, 6(4)
Surveillance and response to diabetes may be accelerated through engaging online diabetes social networks (SNs) in consented research. We tested the willingness of an online diabetes community to share data for public health research by providing members with a privacy-preserving social networking software application for rapid temporal-geographic surveillance of glycemic control.
[ More ]
3 May 2011 | No Comments »
Categories: Science | Tag(s): Data Sharing, Diabetes, Online Communities, social-network, Surveillance
Amy Dockser Marcus, Wall Street Journal
“A new clinical trial found that lithium didn’t slow the progression of Lou Gehrig’s disease, but the findings released Sunday also showed that the use of a social network to enroll patients and report and collect data may deliver dividends for future studies.
[ More ]
26 April 2011 | No Comments »
Categories: News | Country: United States | Tag(s): ALS, Online Communities, Orphan Disease, Research, Social Media
Wicks P et al, Nature Biotechnology, 2011
Patients with serious diseases may experiment with drugs that have not received regulatory approval. Online patient communities structured around quantitative outcome data have the potential to provide an observational environment to monitor such drug usage and its consequences. Here we describe an analysis of data reported on the website PatientsLikeMe by patients with amyotrophic lateral sclerosis (ALS) who experimented with lithium carbonate treatment. To reduce potential bias owing to lack of randomization, we developed an algorithm to match 149 treated patients to multiple controls (447 total) based on the progression of their disease course.
[ More ]
26 April 2011 | No Comments »
Categories: Science | Country: United States | Tag(s): ALS, Drugs, Online Communities, Orphan Disease, Research
Jane Sarasohn-Kahn, Health Populi
“Now there’s a force advocating for “Social Media Liberación” in Health: health activists, the most engaged patients on the planet. WEGO Health polled 223 of the portal’s most active patients in March to update what WEGO Health learned from health activists and presented to the FDA’s hearing on social media in November 2009.
[ More ]
20 April 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Online Communities, Social Media
