Raymond Rendleman, The Lund Report
“Technology is changing so quickly that state officials and advocates overseeing more streamlined transfers of health information in Oregon are scrambling to keep up.
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Charles Wright, eHealthCentral
“A fascinating factoid emerging from the news that NHS Darlington has become the first English primary care trust to complete roll out of the Summary Care Record: only 1.66 per cent of patients opted out of the scheme.
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Charles Wright, eHealthCentral
“The first day of Spring is surely the most appropriate day for Mark Metherell’s story in the Sydney Morning Herald announcing a dramatic turn-around in consumer attitudes to the PCEHR.
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e-Patient Dave, e-patients.net
“Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position.
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Mark Metherell, Sydney Morning Herald
“Consumer health leaders have reversed their demand for the government to require individuals to choose to be part of the system that will enable the electronic storage and transfer of patient records.
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Don Fluckinger, SearchHealthIT
“For all state health IT coordinators, providing patients with privacy and control of their health data is a priority. For many, it’s also a legal mandate, with data privacy rules differing from state to state.
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Fiona Barr, e-Health Insider
“The Department of Health wants every patient in England to have been offered the opportunity to have a Summary Care Record by the end of 2013.
The new target has been set by the DH as it launches a fresh push to inform patients about the SCR and encourage uptake.
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Arielle Levin Becker, CT Mirror
“Say you end up in the emergency room. It’s not connected to your doctor’s office and you don’t have a list of the medications you’re on.
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SA Mathieson, Guardian Professional
“The Department of Health is restarting its summary care record (SCR) programme, with the plan to establish a market of services allowing patients to access their data.
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Security.nl
“Het Elektronisch Patiëntendossier is niet te beveiligen, dat zegt Guido van ‘t Noordende, onderzoeker aan de Universiteit van Amsterdam. Van ‘t Noordende had een expertdiscussie met Bart Jacobs, hoogleraar computerbeveiliging in Nijmegen, die stelt dat het EPD wel veilig is te maken.
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Brown I et al, BMJ, 342
Smyth discusses the recent report from the Academy of Medical Sciences on research regulation. The expert group’s reliance on anonymity to protect participants in research was based on assumptions about key NHS patient data systems that may no longer be justified in an era of ubiquitous data generation and sharing. The report also pays insufficient attention to patient autonomy.
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John Tempesco, Readers Write
“In the original HHS privacy rule, a core component of HIPAA’s purpose was the ability to protect patient privacy while at the same time allowing the sharing of personal health information to facilitate patient care. And while healthcare has finally been dragged, kicking and screaming, to a more comprehensive use of technology, a serious divide has emerged between advocates of patient privacy versus the free flow of data needed to improve patient care.
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Charles Wright, eHealthCentral
“After a five-month hiatus while the new government reviewed Britain’s Summary Care Record, public information programmes aimed at better informing the public on the records and their right to opt out will resume, in some cases before Christmas, according to eHealth Insider.
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Fiona Barr, e-Health Insider
“Public Information Programmes for the Summary Care Record are to restart before Christmas following a five month suspension.
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CMIO
“Were Tuesday’s election results a mandate for change? A repudiation of change? As we all try to figure out what the new political reality will mean for healthcare IT—and when—the HIMSS Virtual Conference earlier this week highlighted some state and federal HIE accomplishments, and some of the plumbing that ensures a steady flow of information.
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Patty Enrado, Healthcare IT News
“The opt-out consent model is the “overwhelming choice for HIEs in the nation,” according to Anna Daly, HIE coordinator for Informatics Corp. of America.
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Smart Healthcare
“Health minister Simon Burns said that patients contacted in future about SCRs will receive an opt out form and a prepaid envelope. There will also be awareness campaigns to inform the 30m people who have already received letters saying their health records will be turned into SCRs.
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Fiona Barr, e-Health Insider
“The Summary Care Record is to go ahead, but its content will be limited to core information and an opt-out form will be included in patient information packs.
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Anthony Guerra, InformationWeek
“Devan McGraw and Paul Egerman, chair and co-chair, respectively, of the Department of Health and Human Services’ Health IT Policy Committee’s privacy and security team, entered the full committee’s August meeting looking for approval of the letter and recommendations they put together over the summer. And while they got that approval in the end, it was only after more than 30 minutes of contentious debate, led on the other side by Neal Calman, MD, president and CEO of the Institute for Family Health.
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Marc Holland, HealthSystemCIO
“In late June, it was reported that the Rhode Island affiliate of the American Civil Liberties Union (ACLU) was bringing suit against the Rhode Island Department of Health, claiming that the rules adopted by DOH to establish a statewide HIE do not go far enough, nor are they explicit enough, to protect patient privacy.
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