William Hersh, Informatics Professor
“In teaching current and future informatics professionals, I often speak about the Internet-savvy baby boomers who will interact more with the healthcare system as they get older, which will likely usher in the era of patient-centered informatics more than anything heretofore.
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Li YC et al, Yearbook of Medical Informatics, 2009(1)
OBJECTIVE
Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use.
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Ross SE et al, J Med Internet Res, 13(3)
BACKGROUND
Adverse drug events are a major safety issue in ambulatory care. Improving medication self-management could reduce these adverse events. Researchers have developed medication applications for tethered personal health records (PHRs), but little has been reported about medication applications for interoperable PHRs.
OBJECTIVE
Our objective was to develop two complementary personal health applications on a common PHR platform: one to assist children with complex health needs (MyMediHealth), and one to assist older adults in care transitions (Colorado Care Tablet).
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Brian T. Horowitz, eWeek
“As Microsoft prepares to move its Amalga health intelligence software into a joint venture with GE, analysts see an uncertain future for the HealthVault personal health record (PHR) platform, which remains with Microsoft.
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Wright A et al, Journal of General Internal Medicine, 27(1)
BACKGROUND
Provider and patient reminders can be effective in increasing rates of preventive screenings and vaccinations. However, the effect of patient-directed electronic reminders is understudied.
OBJECTIVE
To determine whether providing reminders directly to patients via an electronic Personal Health Record (PHR) improved adherence to care recommendations.
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Paul Cerrato, InformationWeek
“The main reason the public doesn’t sign up for PHRs en mass is they don’t really care that much about their health. Yes, concerns about security and privacy and the reluctance of providers to share patient information slow things down, but at its core this is about apathy.
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EndocrineToday.com
“Results of the first usability test of the MyHealtheVet program — the most widely disseminated personal health record system in the United States — indicate a need for improvements in usability.
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Wagner PJ et al, J Am Med Inform Assoc, 2012
Purpose
To examine the impact of a personal health record (PHR) in patients with hypertension measured by changes in biological outcomes, patient empowerment, patient perception of quality of care, and use of medical services.
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Brian Eastwood, Health IT Pulse
“A couple weeks ago, a certain editor proclaimed that personal health record (PHR) services ranked among the health IT trends not to watch in 2012, largely because patients seem reticent to use them.
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MedicalXpress
“A new study recruited patients into a human-computer interaction laboratory to determine the user experience for several popular functions of the Department of Veterans Affairs’ My HealtheVet, the most widely disseminated personal health record system in the United States.
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Haggstrom DA et al, J Am Med Inform Assoc, 18 Suppl 1
In order to create user-centered design information to guide the development of personal health records (PHRs), 24 patients participated in usability assessments of VA’s MyHealtheVet program. Observational videos and efficiency measures were collected among users performing four PHR scenarios: registration and log-in, prescription refill, tracking health, and searching for health information. Twenty-five percent of users successfully completed registration. Individuals preferred prescription numbers over names, sometimes due to privacy concerns.
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Blanson Henkemans OA et al, Gerontechnology, 10(3)
Objective
Contribute to understanding of determinants of attrition in Randomized Controlled Trials (RCTs) on eHealth services for self-care and to developing a strategy to attend to them.
Background
RCTs are considered the “gold standard” in empirical research on medical interventions. However, RCTs of eHealth services for self-care are often faced with Eysenbach’s Law of Attrition; that is, the phenomenon of people dropping out of the study early or being unavailable for follow-up studies.
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Brita Van Fossen, Health IT Pulse
“The heightened push for meaningful use compliance that the health care industry is expecting in 2012 will, of course, involve electronic health records. Patient engagement will also play a key role, and, while personal health record (PHR) adoption rates are rising, there is still a great deal of progress to be made.
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Benhamou P-Y. Diabetes & Metabolism, 37S4
The lack of patient engagement and clinical inertia both contribute to suboptimal diabetes care. However, both obstacles are amenable to informatics- and Internet-based interventions. The use of electronic medical records (EMRs) is now established as being useful for improving diabetes care. Intelligent records that integrate computerized decision-support systems are now able to recommend care protocols tailored to risk levels. Web-based personal health record (PHR) systems, shared with healthcare providers, could also provide added value by promoting self-management of the behaviours related to diabetes. These Web-based programmes include patients’ access to EMRs, uploading of glucose monitoring results, a glucose diary, secure e-mail with providers, manual or automated feedback on blood glucose readings and other risk factors, an educational website, and an online diary for entering personal information on exercise, diet and medication.
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Kim J et al, Healthcare Informatics Research, 17(1)
OBJECTIVES
The purpose of this study was to review history and trends of personal health record research in PubMed and to provide accurate understanding and categorical analysis of expert opinions.
METHODS
For the search strategy, PubMed was queried for ‘personal health record, personal record, and PHR’ in the title and abstract fields. Those containing different definitions of the word were removed by one-by-one analysis from the results, 695 articles. In the end, total of 229 articles were analyzed in this research.
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Kim E-H. Evaluation of Patient-Controlled Personal Health Record on Different Populations (Dissertation), 2011
Over the last decade, personal health records (PHRs) have been increasingly recognized and actively promoted by the U.S. federal government and experts as a tool for improving healthcare and containing skyrocketing costs in the U.S. More recently, the 2010 health reform legislation includes PHRs as an important means to improve the quality and efficiency in healthcare delivery. However, the use of PHRs by various patient groups has not been well studied, and its utility has not been firmly established.
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Zulman DM et al, Annals of Internal Medicine, 155(12)
Background:
Electronic personal health record (PHR) systems are proliferating but largely have not realized their potential for enhancing communication among patients and their network of care providers.
Objective:
To explore preferences about sharing electronic health information among users of the U.S. Department of Veterans Affairs (VA) PHR system, My HealtheVet.
Design:
Web-based survey of a convenience sample.
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Rosie Lombardi, Technology for Doctors Online
“Many doctors believe that better frontline communications with patients, combined with electronic communication between clinics and hospitals, can improve health outcomes. To collect test this notion, Telus Health Solutions is running three pilot projects with EMR vendors Wolf Medical, QHR Technologies and KinLogix Medical.
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Gienna Shaw, HealthLeaders Media
“Healthcare organizations are working to encourage patients to get engaged in their healthcare data, in part by making Personal Health Records more user-friendly.
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Rosa Lin, Medill Reports
“Frank has been in a car accident away from home. He’s flown to a trauma center from another facility, and surgeons are working against the clock to keep him alive. They want to perform a crucial operation, but they need medical images from his Chicago doctors.
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