Secondary Data Use
Tolar M, Balka E. International Journal of Medical Informatics, 2012
It is argued that with the introduction of electronic medical record (EMR) systems into the primary care sector, data collected can be used for secondary purposes which extend beyond individual patient care (e.g., for chronic disease management, prevention and clinical performance evaluation). However, EMR systems are primarily designed to support clinical tasks, and data entry practices of clinicians focus on the treatment of individual patients. Hence data collected through EMRs is not always useful in meeting these ends.
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6 February 2012 | No Comments »
Categories: Science | Country: Canada | EHR: EHR, EHR Canada | Tag(s): Alert/Reminder, Primary Care, Secondary Data Use
e-Health-com News
“Im Rahmen des europäischen Projektes „Electronic Health Records for Clinical Research” (EHR4CR) bauen Partner aus akademischer Forschung und Industrie bis 2014 gemeinsam eine europaweite Technologieplattform auf, die künftig die Sekundärnutzung von Daten aus elektronischen Patientenakten für die klinische Forschung ermöglichen soll.
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18 January 2012 | No Comments »
Categories: News | Country: Europe | EHR: EHR | Tag(s): Ethics, Legal, Research, Secondary Data Use
Michael Cross, Guardian Professional
“On all the official indicators, Barnsley PCT was doing a grand job, but it was troubled. “The bother was that the population kept dying on us,” its former chief executive, Ailsa Claire, told a King’s Fund conference in London last month.
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2 November 2011 | No Comments »
Categories: News | Country: UK | Tag(s): Data Aggregation, De-identification, Secondary Data Use
Ken Terry, InformationWeek
“The federal Health IT Policy committee has recommended that the Department of Health and Human Services (HHS) not require patient consent for the use of electronic health record (EHR) data in research on improving the delivery of healthcare services. At the same time, however, the federal advisory body urged HHS to require healthcare organizations to follow “fair information practices” designed to protect patient privacy.
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30 October 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Consent, Privacy, Research, Secondary Data Use
Bernie Monegain, Healthcare IT News
“The American College of Physicians, which represents 132,000 internal medicine specialists, is proposing a privacy rule that says researchers should maximize appropriate uses of information to achieve scientific advances without compromising ethical obligations to protect individual welfare and privacy.
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20 October 2011 | No Comments »
Categories: News | Country: United States | Tag(s): Physicians, Privacy, Research, Secondary Data Use
Joseph Goedert, HDM Breaking News
“The HIT Policy Committee has issued recommendations to ease secondary uses of electronic health records data.
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12 October 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Secondary Data Use
John Cushman, The Paper Chase
“As someone who gets to see the transition of the medical industry into the 21st century through EMR conversions, I get to thinking frequently about all the ways these conversions affect the rural healthcare community. Also, seeing how the communities they serve are impacted makes me think even more.
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16 September 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Community, Rural, Secondary Data Use
Tolar M, Balka E. International Perspectives in Health Informatics, 2011
With the introduction of electronic medical record (EMR) systems into the primary care sector the collected data become available for purposes beyond individual patient care, i.e. chronic disease management, prevention and clinical performance evaluation. However EMR systems are primarily designed to support clinical tasks, and physicians focus on the treatment of individual patients.
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17 July 2011 | No Comments »
Categories: Science | Country: Canada | EHR: EHR, EHR Canada | Tag(s): Chronic Diseases, Disease Management, Prevention, Primary Care, Secondary Data Use
Mary Mosquera, Government Health IT
“Researchers from a project led by the Mayo Clinic are close to finishing a set of computer tools that can identify and sort digital health information from an electronic health record (EHR) no matter what file format and data organization are used.
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14 July 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Privacy, Secondary Data Use, Security
Thomas McMennamin, EHR Bloggers
“Everyone is talking about leveraging health data to improve care and quality and to lower costs. Health care is one of the few industries that is still waiting for the information revolution to hit.
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16 June 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Data Aggregation, De-identification, Secondary Data Use
Robert Rowley, EHR Bloggers
“The main way the FDA gets this kind of data is through the MedWatch Online Voluntary Reporting system, and from analysis of claims data (mostly from CMS – Medicare). Claims data will, typically, have a 3-month tail, and represent diagnosis codes used for billing (rather than on the clinical front-lines in EHRs).
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15 June 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Claims Data, Drugs, medication-surveillance, Secondary Data Use
John Glaser, H&HN Daily
“Over the last 50 years, information technology has been revolutionizing the world. The impacts of IT are diverse and numerous; IT has spurred global finance, transportation, smart buildings and virtual communities—even public protests against oppressive regimes.
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14 June 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Health Information Technology, Secondary Data Use, Sensors, Ubiquitous
Gardner E. Health Data Management Magazine, 19(6)
With meaningful use taking up all the top slots on the national EHR to-do list, record retention and preservation don’t even make the first page: Data storage is so cheap, so the popular thinking seems to be, we’ll just keep everything and worry about it later. But Milton Corn, M.D., deputy director for research and education at the National Library of Medicine, thinks we should worry about it now.
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30 May 2011 | No Comments »
Categories: Science | Country: United States | EHR: EHR, EHR USA | Tag(s): Data Storage, Genetic Data, Privacy, Research, Secondary Data Use, Standards
Healthcare IT News
“For decades, researchers have used de-identified claims and prescription data from the Thomson Reuters MarketScan Research Databases to conduct studies that evaluate medical treatments — commonly called “outcomes research” or “comparative effectiveness research.”
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23 May 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Claims Data, Clinical Data, De-identification, Effectiveness, emr, Research, Secondary Data Use
Milgram LK et al, ElectronicHealthcare, 10(1)
Provincial health data repositories enable clinical data utilization for secondary data uses. This study profiles the first use of Ontario Laboratories Information System (OLIS) data and demonstrates the value of automating tumour marker data collection to enhance cancer stage information in the Ontario Cancer Registry.
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29 April 2011 | No Comments »
Categories: Science | Country: Canada | Tag(s): Electronic Data Capture, Secondary Data Use
Brown I et al, BMJ, 342
Smyth discusses the recent report from the Academy of Medical Sciences on research regulation. The expert group’s reliance on anonymity to protect participants in research was based on assumptions about key NHS patient data systems that may no longer be justified in an era of ubiquitous data generation and sharing. The report also pays insufficient attention to patient autonomy.
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21 March 2011 | No Comments »
Categories: Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tag(s): Consent, De-identification, Opt out, Research, Secondary Data Use
Allison Proffitt, BioIT World
“The Partnership to Advance Clinical electronic Research or PACeR (www.pacerhealth.org) was created to “convene the users and the collectors of the data to understand how we can safely reuse electronic medical record data to facilitate clinical research,” explains David Krusch, chief medical information officer at the University of Rochester Medical Center and chair of the PACeR leadership committee.
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18 March 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Clinical Data, Data Mining, emr, Hospitals, Research, Secondary Data Use
Lauren Russell, The Daily Tar Heel
“Doctors are increasingly trading paper charts for digital ones, and UNC’s leading the transition through two different efforts.
On one part of campus, UNC Hospitals — working with IBM — launched a new health information exchange last month, making health information easily accessible to health care providers.
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17 March 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): Health Information Exchange, Hospitals, Primary Care, Secondary Data Use
Brown I et al,
This article analyses the legality of the use of electronic patient records in the NHS for research without explicit patient consent under UK and EU law, with particular reference to the adequacy of the information provided to patients and the increasing difficulties of achieving de-identification. In section II, we describe the main NHS databases used for medical research purposes in England and the transparency of this use, and the general problem of re-identification.
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14 March 2011 | No Comments »
Categories: Patients, RA News, RA Research, Record Access, Science | Country: UK | EHR: EHR, EHR UK | Tag(s): Confidentiality, Consent, De-identification, emr, Privacy, Research, Secondary Data Use
Robert Rowley, EHR Bloggers
“Medical data that results from anonymized, centralized Electronic Health Record (EHR) information can provide powerful insights into trends and patterns that might otherwise not be apparent at first-glance. Such data might also provide evidence that can drive EHR development efforts.
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12 March 2011 | No Comments »
Categories: News | Country: United States | EHR: EHR, EHR USA | Tag(s): De-identification, Hypertension, Secondary Data Use
