“This document sets forth recommended policies and guidelines governing consumer consent and other safeguards relating to the exchange of personal health information in an electronic, interconnected health care environment. Interoperable health information exchange entails the exchange of patient health information among disparate clinicians, other authorized entities, and patients in real time while ensuring security and privacy. This process is facilitated by Regional Health Information Organizations (RHIOs) in New York. Interoperable health information exchange is essential to realizing the expected value of health information technology (IT) to support patient care improvements.
Consumer consent is an important element in achieving informed and trusted interoperable health information exchange as well as satisfying New York laws and regulations. RHIOs and their participants, and other technology service companies advancing interoperable health information exchange, are expected to implement and/or comply with the consumer consent and related policies outlined in this document. It is important to emphasize that consent policies must be accompanied by privacy and security protections relating to authentication, authorization, access and audit to earn patient trust and enable successful health information exchange. Comprehensive privacy and security policies and procedures will be published in the 4th quarter of 2008.
The policy recommendations set forth in this paper provide a starting point for advancing interoperable health information exchange in a nascent environment. These recommendations are expected to evolve over time. Additionally, the policy recommendations will be supplemented by more detailed operational guidance to support full implementation by RHIOs in New York.”
Draft Report
SCP, HISPC, September 2008
Tagged: consent, COPD, Health Information Exchange and interoperability
; posted on Wednesday, September 24th, 2008 at 8:46 am
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“Het hulp-op-afstandprogramma voor COPD-patiënten waarmee het Canisius-Wilhelmina Ziekenhuis (CWZ) in Nijmegen in maart de publieksprijs van de NPCF won, behoort nu tot het reguliere zorgaanbod. In het augustusnummer van Vraag in Beeld tonen patiënt en hulpverlener zich enthousiast.”
Article (Dutch)
Zorgvisie, 8 September 2008
Tagged: COPD and telemonitoring
; posted on Tuesday, September 9th, 2008 at 10:05 am
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“It will take time and effort to make telehealthcare a realty, according to Rolien de Jong, innovations manager at The Hague-based Meavita Healthcare. Presenting the experiences of her company at the eHealth 2008 meeting in Slovenia, de Jong pointed out that in order to make the breakthrough, it’s the providers who are taking the risk – not once, not twice, “but again, and again, and again”.”
Article
HealthTech Wire, 19 May 2008
Tagged: COPD, diabetes and telehealth
; posted on Monday, May 19th, 2008 at 5:48 pm
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“Background: People with chronic obstructive pulmonary disease (COPD) continue to experience dyspnea with activities of daily living (ADL) despite optimal medical management. Information and communication technologies may facilitate collaborative symptom management and could potentially increase the reach of such interventions to those who are unable to attend face-to-face pulmonary rehabilitation or self-management programs.
Objective: The purpose of this randomized study was to test the efficacy of two 6-month dyspnea self-management programs, Internet-based (eDSMP) and face-to-face (fDSMP), on dyspnea with ADL in people living with COPD.
Conclusions: Although there were numerous technical challenges with the eDSMP, both dyspnea self-management programs were effective in reducing dyspnea with ADL in the short term. Our findings will need to be confirmed in a larger randomized trial with more mature Web and personal digital assistant tools, use of a control group, and longer follow-up.”
Article
Nguyen HQ, Donesky-Cuenco D, Wolpin S, Reinke LF, Benditt JO, Paul SM, Carrieri-Kohlman V, J Med Internet Res 2008;10(2):e9, DOI 10.2196/jmir.990
Tagged: COPD, internet and self management
; posted on Friday, April 18th, 2008 at 8:43 am
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“A computer feedback system can help patients with chronic obstructive pulmonary disease (COPD) breathe better and improve their exercise capacity, according to a report in the American Journal of Respiratory and Critical Care Medicine.”
Article
Karla Gale, Reuters, 15 April 2008
Tagged: COPD
; posted on Wednesday, April 16th, 2008 at 8:51 am
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