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Article
Bertalan Meskó, ScienceRoll, 1 October 2008
“Doctors who treat themselves may have fools for patients, but they look like geniuses compared with a reporter who tried to diagnose herself via the Internet.
It seemed so simple. I Googled “foot pain,” and up came two sites with neat little pictures of feet, arrows pointing to various parts and instructions to “click where it hurts.” I clicked and voila! both sites said my pain - on the top and side of the foot, around the big toe - was probably from a bunion or gout.”
Article
Denise Grady, Herald Tribune, 30 September 2008
“Are patients swimming in a sea of health information? Or are they drowning in it?
The rise of the Internet, along with thousands of health-oriented Web sites, medical blogs and even doctor-based television and radio programs, means that today’s patients have more opportunities than ever to take charge of their medical care. Technological advances have vastly increased doctors’ diagnostic tools and treatments, and have exponentially expanded the amount of information on just about every known disease.”
Article
Tara Parker-Pope, New York Times, 29 September 2008
“Online personal health record applications, available through a growing number of federal employee health plans, have a variety of forms. But they all are designed to give federal employees a convenient way to track, view and manage personal health information and share that information with providers. Employees can put all their information in a PHR and print it as needed to take with them to medical appointment. More advanced PHRs have access to databases that provide drug interactions and generic versions.”
Article
Mary Mosquera, FCW.com, 29 September 2008
“Searching for health information online is often said to be one of the most common activities on the Internet. Such sweeping (and only partially accurate) claims are mostly based on survey data, such as the Pew Internet & American Life Report, which found that “80% of adult Internet users, or about 93 million Americans, have searched for at least one of 16 major health topics online.” The report concluded that “this makes the act of looking for health or medical information one of the most popular activities online.” Other surveys from industrialized countries have arrived at similar conclusions. For example, Statistics Canada concluded that between 1999 and 2003 health information was the most prevalent Internet activity each year aside from e-mail and “general browsing,” well ahead of such things as searching for travel information, government information, or electronic banking. Surveys further show that these trends also apply to young people. For example, a recent survey of 1,100 U.S. teens ages 12–17 found that 31 percent reported seeking health information online (representing 6 million people), and that teens’ use of the Internet for this purpose was up 47 percent since 2000. Another survey found that three quarters of youth between the ages of 15 and 24 have used the Internet to get health information.”
Bookchapter
Günther Eysenbach, in: Digital Media, Youth, and Credibility. Edited by Miriam J. Metzger and Andrew J. Flanagin. The John D. and Catherine T. MacArthur Foundation Series on Digital Media and Learning. Cambridge, MA: The MIT Press, 2008. 123–154. doi: 10.1162/dmal.9780262562324.123
“Background: Blogs are the major contributors to the large increase of new websites created each year. Most blogs allow readers to leave comments and, in this way, generate both conversation and encourage collaboration. Despite their popularity, however, little is known about blogs or their creators.
Objectives: To contribute to a better understanding of the medical blogosphere by investigating the characteristics of medical bloggers and their blogs, including bloggers’ Internet and blogging habits, their motivations for blogging, and whether or not they follow practices associated with journalism.
Methods: We approached 197 medical bloggers of English-language medical blogs which provided direct contact information, with posts published within the past month. The survey included 37 items designed to evaluate data about Internet and blogging habits, blog characteristics, blogging motivations, and, finally, the demographic data of bloggers.
Pearson’s Chi-Square test was used to assess the significance of an association between 2 categorical variables. Spearman’s rank correlation coefficient was utilized to reveal the relationship between participants’ ages, as well as the number of maintained blogs, and their motivation for blogging. The Mann-Whitney U test was employed to reveal relationships between practices associated with journalism and participants’ characteristics like gender and pseudonym use.
Results: A total of 80 (42%) of 197 eligible participants responded. The majority of responding bloggers were white (75%), highly educated (71% with a Masters degree or doctorate), male (59%), residents of the United States (72%), between the ages of 30 and 49 (58%), and working in the healthcare industry (67%). Most of them were experienced bloggers, with 23% (18/80) blogging for 4 or more years, 38% (30/80) for 2 or 3 years, 32% (26/80) for about a year, and only 7% (6/80) for 6 months or less. Those who received attention from the news media numbered 66% (53/80). When it comes to best practices associated with journalism, the participants most frequently reported including links to original source of material and spending extra time verifying facts, while rarely seeking permission to post copyrighted material. Bloggers who have published a scientific paper were more likely to quote other people or media than those who have never published such a paper (U= 506.5, n1= 41, n2= 35, P= .016). Those blogging under their real name more often included links to original sources than those writing under a pseudonym (U= 446.5, n1= 58, n2= 19, P= .01). Major motivations for blogging were sharing practical knowledge or skills with others, influencing the way others think, and expressing oneself creatively.
Conclusions: Medical bloggers are highly educated and devoted blog writers, faithful to their sources and readers. Sharing practical knowledge and skills, as well as influencing the way other people think, were major motivations for blogging among our medical bloggers. Medical blogs are frequently picked up by mainstream media; thus, blogs are an important vehicle to influence medical and health policy.”
Article
Kovic I, Lulic I, Brumini G, J Med Internet Res 2008;10(3):e28, doi:10.2196/jmir.1118
“Context The increasing use of Internet-based learning in health professions education may be informed by a timely, comprehensive synthesis of evidence of effectiveness.
Objectives To summarize the effect of Internet-based instruction for health professions learners compared with no intervention and with non-Internet interventions.
Data Sources Systematic search of MEDLINE, Scopus, CINAHL, EMBASE, ERIC, TimeLit, Web of Science, Dissertation Abstracts, and the University of Toronto Research and Development Resource Base from 1990 through 2007.
Study Selection Studies in any language quantifying the association of Internet-based instruction and educational outcomes for practicing and student physicians, nurses, pharmacists, dentists, and other health care professionals compared with a no-intervention or non-Internet control group or a preintervention assessment.
Data Extraction Two reviewers independently evaluated study quality and abstracted information including characteristics of learners, learning setting, and intervention (including level of interactivity, practice exercises, online discussion, and duration).
Data Synthesis There were 201 eligible studies. Heterogeneity in results across studies was large (I2 79%) in all analyses. Effect sizes were pooled using a random effects model. The pooled effect size in comparison to no intervention favored Internet-based interventions and was 1.00 (95% confidence interval [CI], 0.90-1.10; P < .001; n = 126 studies) for knowledge outcomes, 0.85 (95% CI, 0.49-1.20; P < .001; n = 16) for skills, and 0.82 (95% CI, 0.63-1.02; P < .001; n = 32) for learner behaviors and patient effects. Compared with non-Internet formats, the pooled effect sizes (positive numbers favoring Internet) were 0.10 (95% CI, –0.12 to 0.32; P = .37; n = 43) for satisfaction, 0.12 (95% CI, 0.003 to 0.24; P = .045; n = 63) for knowledge, 0.09 (95% CI, –0.26 to 0.44; P = .61; n = 12) for skills, and 0.51 (95% CI, –0.24 to 1.25; P = .18; n = 6) for behaviors or patient effects. No important treatment-subgroup interactions were identified.
Conclusions Internet-based learning is associated with large positive effects compared with no intervention. In contrast, effects compared with non-Internet instructional methods are heterogeneous and generally small, suggesting effectiveness similar to traditional methods. Future research should directly compare different Internet-based interventions.”
Abstract
David A. Cook; Anthony J. Levinson; Sarah Garside; Denise M. Dupras; Patricia J. Erwin; Victor M. Montori; JAMA. 2008;300(10):1181-1196
“Expert panels and policy analysts have often ignored potential contributions to health information technology (IT) from the Internet and Web-based applications. Perhaps they are among the “unmentionables” of health IT. Ignoring those unmentionables and relying on established industry experts has left us with a standards process that is complex and burdened by diverse goals, easy for entrenched interests to dominate, and reluctant to deal with potentially disruptive technologies. We need a health IT planning process that is more dynamic in its technological forecasting and inclusive of IT experts from outside the industry.”
Abstract
David C. Kibbe and Curtis P. McLaughlin, Health Affairs, 27, no. 5 (2008): w396-w398, doi: 10.1377/hlthaff.27.5.w396
“The days of walking down to the general store for prescription drugs are returning to rural America, thanks to a virtual pharmacy system that has been tested on the frozen prairie.
As recently as three years ago, many elderly residents in this area of southeastern North Dakota were forced to order their medications by mail. Now, customers have a real drug store and can talk to a real person who’s connected to a pharmacist by the Internet.”
Article
Dave Kolpack, Houston Chronicle, 6 September 2008
“Fifty-six percent of American adults surveyed during the first nine months of 2007 sought information on a personal health concern from a source other than their physician, according to survey results recently released.”
Article
Health Data Management, 8 September 2008
“Health disparities are inequalities in the quality of health and health care across ethnic, racial, and socioeconomic groups. This article focuses on the health disparities of African Americans and identifies several consumer health Internet resources.”
Abstract
Susan Mongold, Journal of Consumer Health on the Internet, Volume: 12 Issue: 3, 251 - 260, DOI: 10.1080/15398280802143715
“The prevalence of Web-based patient networks creates a substantial need for health information professionals to consider the qualities of such patient-mediated communities. By understanding the social and design characteristics of such communities through online patient community ethnography and comparative analysis of Web information evaluation criteria, health information professionals can better understand how to evaluate these information sources and find service integration points.”
Abstract
Susan Scola-Streckenbach, Journal of Consumer Health on the Internet, Volume: 12 Issue: 3, 216 - 236, DOI: 10.1080/15398280802143657
“The recently announced merger of Kaleida Health and Erie County Medical Center is an important step in a series of critical changes needed to enhance the quality of care in Western New York. However, we need to take an important physician-driven next step: the implementation of a regionwide medical information exchange connecting physicians, hospitals and insurers.”
Article
Raghu Ram, The Buffalo News Opinion, 5 September 2008
“Americans have the right to access and take ownership of their health records, yet few take advantage of it despite the increasing complexity and cost of health care.
Physicians, for their part, are wary of relying on records provided by patients.”
Article
Gary Gosselin, Michigan Business Review, 3 September 2008
“In 2007, 56 percent of American adults—more than 122 million people—sought information about a personal health concern, up from 38 percent in 2001, according to a new national study by the Center for Studying Health System Change (HSC). Use of all information sources rose substantially, with the Internet leading the way: Internet information seeking doubled to 32 percent during the six-year period. Consumers across all categories of age, education, income, race/ethnicity and health status increased their information seeking significantly, but education level remained the key factor in explaining how likely people are to seek health information. Although elderly Americans—65 and older—sharply increased their information seeking, they still trail younger Americans by a substantial margin, especially in using Internet information sources. Consumers who actively researched health concerns widely reported positive impacts: More than half said the information changed their overall approach to maintaining their health, and four in five said that the information helped them to better understand how to treat an illness or condition.”
Report
Ha T. Tu, Genna Cohen, Health System Change, August 2008
“This prospective questionnaire study investigated access to the Internet and use of the Internet for health related information. Patients attending the senior author’s ENT clinic (204 in 2000; 209 in 2006) were asked two questions: do you have access to the Internet? Have you used the Internet to find health related information? Access to the Internet rose from 43 per cent (88) in 2000 to 70 per cent (147) in 2006, a significant increase (p < 0.001). The Internet was used for health related information by only 32 patients (16%) in 2000 but by 114 (55%) in 2006, a dramatic and significant increase (p < 0.001). Clearly patients and their families are increasingly using the Internet to access and seek health information. Clinicians cannot overlook this aspect of health provision when seeking to facilitate the transmission of information to their patients."
Abstract
Matthew I. Trotter, David W. Morgan, Health Informatics Journal, Vol. 14, No. 3, 175-181 (2008), DOI: 10.1177/1081180X08092828
“The Internet is changing the way Americans engage with information, whether they are choosing a president or making health care decisions. Two major drivers for this change are broadband adoption and personal motivation.
First, an update: The Pew Internet Project estimates that between 75% and 80% of Internet users have looked online for health information. We get slightly different results for the size of the e-patient population depending on our survey strategy, but these results are close enough to make us confident we have the right contours of this group. Our estimate is also in line with Harris Interactive’s latest data on health information seekers (81% of Internet users; 66% of all adults).”
Article
Susannah Fox, iHealthBeat, 12 August 2008
“Where is the boundary between personal and professional use of the Internet? What does this mean for healthcare social media?”
Article
Hippocrates, Trusted MD, 11 August 2008
“An Internet-based blood-sugar monitoring program appears to help people with type 1 diabetes better manage their condition, researchers report.”
Article
Joene Hendry, Reuters, 08 August 2008
“A cancer patient from the French islands of St-Pierre-Miquelon told Newfoundland and Labrador’s Cameron inquiry that she learned her breast cancer tests were flawed when she read a news story on the internet in 2005.”
Article
CBC News, 1 August 2008
“IBM previewed a unique Social Accessibility collaboration software, developed by IBM Research, which allows Internet users to improve Web accessibility, particularly for those who are visually impaired.”
Article
eHealthNews.eu, 31 July 2008
“A new survey reveals that 85.6 million U.S. adults have doubted the opinion of their doctors or other medical professionals when it conflicts with information found online.
That number represents about 38 percent of the population.”
Article
Bernie Monegain, Healthcare IT News, 30 July 2008
“Operating rooms used to be places with limited access, the domain of medical professionals and their patients. Now operating rooms are opening up, offering the world invitations to watch when surgeons go to work.
Halifax Health Medical Center in Daytona Beach has shown two surgical procedures live over the Internet since April, and it plans to air a third operation — a lapband procedure — in the fall.”
Article
Linda S. Humphrey, Orlando Sentinel, 27 July 2008
“Virtually 100% of American teens have access to the Internet either at home, school, libraries, or elsewhere, and the majority are using it daily. The Internet has become one of the most important vehicles to educate and inform young people about health and medical issues. However, many teens have limited searching skills or problems with literacy and other issues that may make it difficult for them to locate and understand authoritative information. Parents, teachers, school nurses, health professionals, librarians, and Web designers who impact teenagers’ health knowledge and skill development in information seeking, health decision making, and health literacy should be aware of the issues in dealing with this unique group and should also be familiar with quality health resources on the Web.”
Abstract
Elaine N. Skopelja, Elizabeth C. Whipple, Peggy Richwine, Journal of Consumer Health on the Internet, Volume: 12, Issue: 2, 105 - 118, DOI: 10.1080/15398280802121406
“The Internet must be an essential tool for pharmaceutical companies trying to recruit patients for clinical trials, concludes a new report from a British-based market analysis firm.
The report, the latest in the “eHealthInsight Series” from Datamonitor, notes that an increasing number of pharmaceutical companies are using the Internet at all stages of the clinical trial process, including patient recruitment and retention, to overcome delays that harm profits.”
Article
Richard Pizzi, Healthcare IT News, 23 July 2008
“Background: Patients in the United States commonly use the Internet to acquire health information. While a significant amount of health-related information is available on the Internet, the accuracy of this information is highly variable.
Objectives: The objective of the study was to determine how effectively students can assess the accuracy of Internet-based material when gathering information on a controversial medical topic using simple keyword searches.
Methods: A group of 34 students from the science magnet high school in Houston, Texas searched for the terms “vaccine safety” and “vaccine danger” using Google and then answered questions regarding the accuracy of the health information on the returned sites. The students were also asked to describe the lessons they learned in the exercise and to answer questions regarding the strength of evidence for seven statements regarding vaccinations. Because of the surprising revelation that the majority of students left the exercise with inaccurate information concerning the safety and efficacy of vaccines, these same students participated in a follow-up study in which a fact-based vaccine video was shown, after which the assessment of student knowledge was repeated.
Results: Of the 34 participants, 20 (59%) thought that the Internet sites were accurate on the whole, even though over half of the links (22 out of 40, 55%) that the students viewed were, in fact, inaccurate on the whole. A high percentage of the students left the first exercise with significant misconceptions about vaccines; 18 of the 34 participants (53%) reported inaccurate statements about vaccines in the lessons they learned. Of the 41 verifiable facts about vaccines that were reported by participants in their lessons-learned statement, 24 of those facts (59%) were incorrect. Following presentation of the film, the majority of students left the exercise with correct information about vaccines, based on their lessons-learned statement. In this case, 29 of the 31 participants (94%) reported accurate information about vaccines. Of the 49 verifiable facts about vaccines that were reported by participants, only 2 (4%) were incorrect. Students had higher correct scores in the “strength of evidence” exercise following exposure to the video as well.
Conclusions: Allowing students to use the Internet to gain information about medical topics should be approached with care since students may take away predominantly incorrect information. It is important to follow up conflicting information with a solid, unambiguous message that communicates those lessons that the instructor deems most important. This final message should be fact based but may need to contain an anecdotal component to counter the strong emotional message that is often delivered by inaccurate Internet sites.”
Article
Philip Kortum, Christine Edwards, Rebecca Richards-Kortum, J Med Internet Res 2008;10(2):e17, doi:10.2196/jmir.986
“Blind people generally use computers with the help of screen-reader software, but those products can cost more than $1,000, so they’re not exactly common on public PCs at libraries or Internet cafes. Now a free new web-based program for the blind aims to improve the situation.”
Article
Donna Gordon Blankinship, AP, 19 July 2008
“The Internet and its associated technology have changed our lives, expectations and aspirations. We rely on the transfer of secure information for the conduct of our daily lives – from purchasing travel tickets, managing
our finances, and storing documents and photographs on the web. We also regularly use the web as a source of information, increasingly on health related topics.”
Report
DH, July 2008
“An increasing number of “healthcare overachievers” are bringing health information from the Internet to the doctor’s office to discuss during the office visit. In fact, virtually all physicians report at least some of their patients arrive armed with health information from the Internet, according to the latest physician market research study released by pharmaceutical market research company Manhattan Research. These patients are being rewarded for their efforts, as the majority of physicians report that they spend more time with the patient as a result of their bringing information in to the office visit.”
Article
Medical News Today, 14 July 2008
“A series of online NHS health guides for people with long term conditions has been launched on the NHS Choices website. The guides take patients from symptoms to diagnosis to living with and self-managing their condition.”
Article
e-Health Insider, 14 July 2008
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