“I’ve known several doctors who refused to read e-mail from patients. They said it was simply a bad use of their time.
I also used to have a doctor who hated it whenever you came in and asked questions about some article you’d read in The Times about Lyme disease or some such. He’d get a pained look on his face — here we go again; patients pretending to be doctors — and then ignore the question.
But surely it’s in everyone’s best interest for patients to stay informed, right? For patients to do their own research, to ask lots of questions — especially of their own doctors — and so forth, right? Right?”
Article
Stephen J. Dubner, EconTech, 26 September 2008
Tagged: e mail, health information and patient
; posted on Monday, September 29th, 2008 at 9:03 am
No Comments »
“We had an excellent gala conference dinner at the New Connaught Rooms on Wednesday evening. Due to trying to get things to work properly on the BCS wireless and Ethernet networks, I was not able to take notes on the session by Celia Boyer and Petra Wilson on ‘Trustworthiness in the age of Web 2.0?; however, they covered the Health on the Net code and related issues , and generated discussion of how we might ‘kitemark’ reliable websites that are Web 2.0-based and on which content might be changing rapidly.”
Article
Peter, hi-blogs.info, 25 September 2008
Tagged: europe, health 2.0, patient and web 2.0
; posted on Thursday, September 25th, 2008 at 8:34 pm
No Comments »
“With the dawn of electronic medical records (EMRs) and patient portals, there is an unprecedented opportunity to provide truly collaborative patient-centred care. These tools can promote communication between healthcare providers and patients, improve chronic disease management and enable patients to become active members in the healthcare delivery system, but only if the tools work for everyone involved - including patients. Without patient consultation and input, there will be limitations in the ways in which physicians and patients are able to capitalize on these tools. Decision-makers must begin to enact their commitment to collaborative patient-centred care by engaging patients in discussions related to EMR design, implementation and use.”
Abstract
Rebecca L. Mador, Nicola T. Shaw, Stephen Cheetham and Robert J. Reid, Electronic Healthcare, 7(2) 2008: 90-92
Tagged: emr, patient and portal
; posted on Wednesday, September 24th, 2008 at 8:20 pm
No Comments »
“From today’s JAMA:
“…Yet patients can be stingy too—stingy with their respect and their gratitude. For all our hard-earned knowledge and personal sacrifice, don’t we deserve a little reverence? Of course we do. However,whether we deserve it or not is irrelevant because times have changed. Patients are no longer passive and adoring, and our relationship is no longer hierarchical and paternalistic. It is when we see this change as a demotion, rather than as an evolution, that our hackles get raised.
Delia Chiaramonte, JAMA. 2008;300(12):1393-1394.”
Article
Marina, Im-Patient, 24 September 2008
Tagged: clinician patient relationship, empowerment and patient
; posted on Wednesday, September 24th, 2008 at 8:05 pm
No Comments »
“The newest edition of Health Affairs includes the story of Michelle Mayer, a patient whose odyssey seems to validate consumer-driven medicine—at least on the surface. But a closer look reveals that Mayer’s tale is no consumerist parable; in fact, it’s a great example of consumer-driven medicine’s shortcomings as a model for health care.”
Article
Niko Karvounis, Health Beat, 22 September 2008
Tagged: clinician patient relationship, consumer, empowerment, health information and patient
; posted on Tuesday, September 23rd, 2008 at 7:52 am
No Comments »
“Last week, PatientsLikeMe presented a keynote address at the inaugural Medicine 2.0 Congress in Toronto, Canada in front of 200 researchers from 20 countries. A new, annual international conference on Web 2.0 (social web) applications in health and medicine, this year’s event was centered around the theme: “Building Virtual Communities and Social Networking Applications for Patients and Consumers.” You can view the entire conference proceedings online. The event is organized by Gunther Eysenbach, MD MPH, who is the editor and publisher of the Journal of Medical Internet Research, where Jeana Frost and I recently published our paper - “Social Uses of Personal Health Information Within PatientsLikeMe”.”
Article
PatientsLikeMe, 12 September 2008
Tagged: community, medicine 2.0, networks, patient, social network and virtual
; posted on Saturday, September 13th, 2008 at 9:14 am
No Comments »
“The British Medical Association has called for a single web-portal to be created to provide European citizens with information on cross-border care.
In its response to the European Commission’s proposal for a directive on the application of patients’ rights to cross-border healthcare, the BMA, which represents UK doctors, says patients will need much more information than is being proposed at the moment to make their rights effective.”
Article
e-Health Europe, 11 September 2008
Tagged: europe, patient and portal
; posted on Thursday, September 11th, 2008 at 8:15 pm
No Comments »
“A website allowing patients to manage their health records is to be set up by the government in an attempt to give people more control over their care.
The website, HealthSpace, which is being piloted, will allow patients to record information about their health as well as what treatments they are receiving.”
Article
David Batty, The Guardian, 4 July 2008
Tagged: patient and web
; posted on Friday, July 4th, 2008 at 9:35 am
No Comments »
“As part of the Renewed Social Agenda, the Commission adopted today a proposal for a directive to facilitate the application of European patients’ rights in relation to cross-border healthcare, as well as a Communication on improving co-operation between Member States in this area. Despite several clear European Court of Justice rulings confirming that the EU Treaty gives individual patients the right to seek healthcare in other Member States and be reimbursed at home, uncertainty remains over how to apply the principles of this jurisprudence more generally. With this proposal the Commission aims to provide legal certainty on this issue. This follows calls from both the European Parliament and the Council of Ministers for the Commission to propose a specific initiative on cross-border healthcare, in a way explicitly adapted to, and respecting, the unique nature of the healthcare sector. In addition, the proposed Directive provides a solid basis to unlock the huge potential for European cooperation to help improve the efficiency and effectiveness of all EU health systems.”
Article
European Commission, 2 July 2008
Tagged: europe, legal and patient
; posted on Thursday, July 3rd, 2008 at 9:02 am
No Comments »
“When he was diagnosed with kidney cancer last year, Dave deBronkart needed an easy way to keep his far-flung friends and family updated. So did the president of the American Medical Association when he fell ill months ago. And so did the mother of a soldier wounded in Iraq who later suffered brain damage.
They all turned to the Internet, setting up individual Web sites to give progress reports. In return, they get posted notes of encouragement and support - all without having to repeat the details in emotional and exhausting phone calls.”
Article
Stephanie Nano, The Clarion Ledger, 8 June 2008
Tagged: patient, support and web
; posted on Monday, June 9th, 2008 at 8:07 am
No Comments »
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