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“OASIS, a Boston-based international consortium that develops e-business standards, has formed a technical committee to standardize how health care providers and payers exchange privacy policies, consent directives and authorizations. The goal is to have standard formats for the exchange of this data to further interoperability of information systems.”
Article
Health Data Management, 9 October 2008
“There has been more written, commented upon and just general noise around the whole topic of privacy and medical records that it is often difficult to separate what truly is important and reason for concern and what is not.”
Article
John Moore, Chilmark Research, 7 October 2008
“Slowly but surely, using the Internet for your health needs is becoming as mainstream as shopping on the web: no longer futuristic, but is it for everyone? And perhaps more importantly, are mainstream commercial health platforms from companies like Google and Microsoft really useful for people with specific chronic illnesses? I thought it would be interesting to hear their side of the story.
So please welcome Missy Krasner, Product Marketing Manager for Google Health, whom I was lucky enough to catch up with for an interview last week.”
Article
Amy Tenderich, The Health Care Blog, 7 October 2008
“Ombudsman Bernard Richard says New Brunswickers need to insist that their private health information be protected as the province moves to electronic health records.
“It’s a sacred trust in my view,” Richard said Wednesday. “And it’s one that’s really in the hands of the health minister and public authorities. But they need to know that we care about it - that it’s important”.”
Article
Jeff Sharom, Science Canada, 2 October 2008
“Rhode Island will build a statewide health information exchange (HIE) as a result of Gov. Don Carcieri Monday signing into law the Rhode Island Health Information Act of 2008.
The state has tasked the Rhode Island Quality Institute, a private agency, to run the voluntary HIE. The institute has received a $5 million federal grant to build the network but will seek additional funding from the state and health insurers, according to the Providence Journal.”
Article
Health Imaging News, 1 October 2008
“Data privacy remains a top concern as Google seeks more users, partners for its new personal health-record platform.”
Article
Rebecca Vesely, Modern Healthcare, 29 September 2008
“Personalized medicine has just begun to alter health care in fundamental and profound ways. Genetic tests have already become mainstream practice for some cancers in identifying treatment strategies. And as an indication of what the future might hold, genetic analyses indicate that asthma, hypertension and Alzheimer’s have many genes in common. But before we can take full advantage of available genetic information, there are four factors we need to address: the electronic health record, reimbursement, privacy practices, and provider and patient education. These are in addition to the progress in medical science needed to understand the specifics of the relationships among our genome, the environment and our health.”
Article
John Glaser, HHNMostWired, 1 October 2008
“The Department of Health and Human Services has published a final rule to exempt four federal “systems of records,” or computer systems, from several provisions of the Privacy Act. These systems include one used to track alleged violations of HIPAA’s administrative simplification provisions.”
Article
Health Data Management, 29 September 2008
“The State Alliance for e-Health, made up of governors and state officials from across the country, is calling on states to support e-prescribing and address medical privacy and security issues in order to boost healthcare IT.”
Article
Bernie Monegain, Healthcare IT News, 23 September 2008
“Although the Health and Human Services Department has made progress in ensuring the protection of health information in a national network, there is still room for improvement, according to a new report by the Government Accountability Office.”
Article
John Moore, Government Health IT, 18 September 2008
“Although advances in information technology (IT) can improve the quality and other aspects of health care, the electronic storage and exchange of personal health information introduces risks to the privacy of that information. In January 2007, GAO reported on the status of efforts by the Department of Health and Human Services (HHS) to ensure the privacy of personal health information exchanged within a nationwide health information network. GAO recommended that HHS define and implement an overall privacy approach for protecting that information. For this report, GAO was asked to provide an update on HHS’s efforts to address the January 2007 recommendation. To do so, GAO analyzed relevant HHS documents that described the department’s privacy-related health IT activities.”
Report
GAO, 17 September 2008
“HHS has made progress in its efforts to implement electronic health records, but lacks an adequate system for ensuring that privacy concerns are addressed, according to a Government Accountability Office report released Wednesday, CongressDaily reports.”
Article
iHealthBeat, 18 September 2008
“The advent of “in the cloud” medical records services, such as Microsoft HealthVault and Google Health, promises an explosion in the storage of personal health-care information online.
But these services pose sticky privacy questions — unless you know how to protect your personal medical records.”
Article
Stuart J. Johnston, Windows Secret, 18 September 2008
“With its rollout coming closer, critics of the German smartcard project are once again becoming louder. Three regional political representative bodies of doctors, dentists and pharmacists are now supporting an anti-smartcard alliance.”
Article
e-Health Europe, 17 September 2008
“On Monday, House Ways and Means Health Subcommittee Chair Pete Stark (D-Calif.) introduced a bill designed to create a nationwide system of electronic health records, CongressDaily reports.
Under the bill, physicians who use an approved EHR system would be eligible for up to $40,000 over five years in Medicare incentive payments, while hospitals could receive several million dollars. Eventually, the Medicare incentive payments would be phased out, and Medicare reimbursements would decrease for health care providers that do not use an approved EHR system.”
Article
iHealthBeat, 16 September 2008
“We fully agree with Carol Diamond and Clay Shirky that deployment of health information technology (IT) is necessary but not sufficient for transforming U.S. health care. However, the recent work to advance health IT is far from an exercise in “magical thinking.” It has been strategic thinking. To illustrate this, we highlight recent initiatives and progress under four focus areas: adoption, governance, privacy and security, and interoperability. In addition, solutions exist for health IT to advance rapidly without adversely affecting future policy choices. A broad national consensus is emerging in support of advancing health IT to enable the transformation of health and care.”
Abstract
Robert M. Kolodner, Simon P. Cohn and Charles P. Friedman, Health Affairs, 27, no. 5 (2008): w391-w395, doi: 10.1377/hlthaff.27.5.w391
“De persoonlijke zorgdossiers van Google en Microsoft kunnen een nuttige aanvulling vormen op het landelijk EPD. Google Health en Health Vault van Microsoft maken het landelijk EPD echter niet overbodig. Dat stelt Nictiz in een artikel dat deze week op de website wordt gezet.”
Article (Dutch)
Mario Gibbels, ICTZorg, 9 September 2008
“The genesis of the privacy preserving data mining techniques haul out the relevant intellect from mammoth amount of data in Tele-health care systems, while shielding at the same time sensitive information. A number of data fishing techniques, integrating privacy protection mechanisms, have been developed that allow one to smokescreen sensitive item sets or patterns, ahead of the execution of the data fishing process. An imperative issue is to settle on which ones among these privacy preserving techniques are superior enough to protect sensitive information. In this paper, we analyse the existing privacy breaches data perturbation techniques. With the impetus of increasing the data utility, and without compromising the simplicity of the process of perturbation, we have proposed a new variant of the random projection-based perturbation technique for mystifying the tele-health care data of individuals called the flustering approach. We have implemented and evaluated the competence of flustering technique on our own conceptual framework. We hope the proposed solution will get hold of new techniques, paving the way for a research track and working well, according to the evaluation metrics, including hiding effects, data utility and time performance.”
Abstract
J. Indumathi, G.V. Uma, International Journal of Healthcare Technology and Management 2008 - Vol. 9, No.5/6 pp. 495 - 516, DOI: 10.1504/IJHTM.2008.020201
“A former senior advisor in the Department of Health and Human Services (HHS) is heading up the first large-scale effort to certify health-IT products for adherence to privacy standards.
For the past month, William Yasnoff, has been the part-time chief executive and a board member of Patient Privacy Certified, a new, nonprofit affiliate of the Patient Privacy Rights Foundation (Austin, Texas). Deborah Peel, the founder and public face of Patient Privacy Rights, is serving as chair of the certification program.”
Article
Neil Versel, Digital Healthcare & Productivity, 3 September 2008
“How would you feel about your personal health information flowing freely over the Internet between public health officials, health care providers, insurance and data clearinghouse companies, and others — without your permission?”
Article
Sue A. Blevins, The Ithaca Journal, 1 September 2008
“Waiting to meet someone for lunch today here in Harvard Square at the Out of Town News store and on the rack was the latest, September issue of Scientific American. The September issue is dedicated to security and privacy in a digital world. Though I have not read any of the articles, (will pick up the issue on my way home tonight), based on what I saw in the online version, this looks like a must read issue for the healthcare sector.”
Article
John Moore, Chilmark Research, 22 August 2008
“We fully agree with Carol Diamond and Clay Shirky that deployment of health information technology (IT) is necessary but not sufficient for transforming U.S. health care. However, the recent work to advance health IT is far from an exercise in “magical thinking.” It has been strategic thinking. To illustrate this, we highlight recent initiatives and progress under four focus areas: adoption, governance, privacy and security, and interoperability. In addition, solutions exist for health IT to advance rapidly without adversely affecting future policy choices. A broad national consensus is emerging in support of advancing health IT to enable the transformation of health and care.”
Article
Robert M. Kolodner, Simon P. Cohn, and Charles P. Friedman, Health Affairs, 19 August 2008
“The push toward electronic medical records has made storing personal health information in a locked filing cabinet in your doctor’s office an outmoded guarantee of confidentiality. Today, patients can gather their jumbled health information—hospital visits, drug prescriptions and health insurance plans—and manage them through a number of different online services, including Google Health, Microsoft’s HealthVault and AOL co-founder Steve Case’s Revolution Health.”
Article
Peter Sergo, Scientific American, 19 August 2008
“Adam Bosworth made quite a name for himself in the healthcare space while he was leader of the Google Health initiative. All got quite strange, however, when while on vacation late last summer, Bosworth decided not to return to Google Health. And while Bosworth went into stealth mode to develop Keas, Google chose not to replace him (a mistake) and Google Health fell under the tutelage of Marissa Mayer.”
Article
John Moore, Chilmark Research, 18 August 2008
“It’s been a while since I’ve written but ran across this article titled ‘MyFamilyHealth is a great Web 2.0 health site’, while researching another topic and had to type something. First, I’m not a web2.0 expert like my esteemed collegue, LoriMac, - but I do cover security for our team.”
Article
Pete Silva, DevCentral, 14 August 2008
“I tend not to get too exercised about privacy issues regarding personal health records, in part because the horse is already out of the barn. This point was made abundantly clear in a recent article (see: “Health 2.0? vs. Health Insurers: The Looming Clash).”
Article
Bruce Friedman, Lab Soft News, 12 august 2008
“It is good to see HISA is being pro-active in this complex and difficult area. We need much more thought given to all this – unmediated in my view – from the pressure applied by entities like NEHTA to have their previews prevail. Real public consultation is what is needed here to have e-Health succeed.”
Article
David More, Australian Health Information technology, 12 August 2008
“Yes, I do rant on at times about the whole privacy of health data issue as there is so much fear mongering, ill-informed/ill-logical pronouncements and just mis-information that it makes me want to scream. Of course, there is also the nearly weekly reports of this healthcare institution or that blowing it with regards to security and inadvertently releasing )stolen, or just mis-managed) consumer health data.”
Article
John Moore, Chilmark Research, 6 August 2008
“This brings up one big issue, something I have been aware of for a while, collecting data for one purpose and being used for another, think this doesn’t happen, think again. When you sign up for health insurance, you sign you life away for all this data to be collected and reviewed for the process of qualifying for health insurance. Ingenix is a division of United Healthcare and one company who does this with profits of over 1 billion last year.”
Article
The Medical Quack, 4 August 2008
CASE OF I v. FINLAND
Judgment
European Court of Human Rights, 17 July 2008
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