“The Internet is used by 75% of American adults to search for health or medical information online; 1 in 10 are searching for health information right now as you read this [1]. Indeed, the amount of information available on the Internet related to health and medicine is staggering. While much of it is credible, an equal or greater amount of misinformation also exists.”
Article
Highlight Health 2.0, 28 October 2008
Tagged: health 2.0, health information, patient, portal, search and social network
; posted on Wednesday, October 29th, 2008 at 7:54 pm
No Comments »
“The open-source movement worked wonders for software. Can it do the same for diabetes and other illnesses?
As the U.S. presidential debates have shown, Barack Obama and John McCain can’t agree on much. One rare exception: electronic health records. Obama has proposed spending $50 billion to help doctors and hospitals digitize their files and build patient databases. McCain agrees that electronic recordkeeping could lower costs and save lives—say, by helping doctors more easily recognize which patients are on dangerous drug combinations.”
Article
Barrett Sheridan, Newsweek, 16 October 2008
Tagged: diabetes, open source, social network and web 2.0
; posted on Friday, October 17th, 2008 at 8:07 am
No Comments »
“In When Did We Start Trusting Strangers: The How the Internet Turned Us All into Influencers, UM analyzed the online behaviors of thousands of Internet users in 29 countries. UM found that today, we trust strangers as much as close friends. Furthermore, “friendship is no longer local or face to face: it’s becoming distant and virtualized,” the report asserts.”
Article
Jane Sarasohn-Kahn, Health Populi, 14 October 2008
Tagged: health information, internet and social network
; posted on Tuesday, October 14th, 2008 at 7:26 pm
No Comments »
“U ziet ons vaker schrijven over de inzet van nieuwe media in de zorg. We doen dit in navolging van ontwikkelen in “de rest” van de maatschappij waarin de manier van communiceren aan het veranderen is. Korter, sneller, oppervlakkiger. In het laatste schuilt natuurlijk een gevaar, we moeten dus alert blijven op het doorslaan van deze maatschappelijke ontwikkeling daar dit niet alleen een on-line verschijnsel is.”
Article (Dutch)
Lucien Engelen, Acute Zorgregio Oost, 9 October 2008
Tagged: Blog, community, social network and web 2.0
; posted on Thursday, October 9th, 2008 at 8:18 pm
No Comments »
“Last week, PatientsLikeMe presented a keynote address at the inaugural Medicine 2.0 Congress in Toronto, Canada in front of 200 researchers from 20 countries. A new, annual international conference on Web 2.0 (social web) applications in health and medicine, this year’s event was centered around the theme: “Building Virtual Communities and Social Networking Applications for Patients and Consumers.” You can view the entire conference proceedings online. The event is organized by Gunther Eysenbach, MD MPH, who is the editor and publisher of the Journal of Medical Internet Research, where Jeana Frost and I recently published our paper - “Social Uses of Personal Health Information Within PatientsLikeMe”.”
Article
PatientsLikeMe, 12 September 2008
Tagged: community, medicine 2.0, networks, patient, social network and virtual
; posted on Saturday, September 13th, 2008 at 9:14 am
No Comments »
“That’s when I finally got it: How great would it be if, through the medical record, I could interact with multiple specialists who have seen my patient – in real time, just like my kids are interacting with far-flung friends on Facebook. And if nurses could leave me a note which I could answer online without having to respond to a page. And if the daily plan for a patient – developed collaboratively – could be shared among all the caregivers, with notes appended when a patient’s clinical ship seemed to be blowing off course.”
Article
Bob Wachter, The Health Care Blog, 11 September 2008
Tagged: social network and web 2.0
; posted on Thursday, September 11th, 2008 at 8:27 pm
No Comments »
“I am a physician and researcher passionate on the “new” patient-health care provider relationship, specifically on topics of patient engagement and empowerment , virtual communities and support groups, new models of care for patients, remote patient monitoring, shared decision making, and equity in health through technology.
I am a ’survivor’ of three near-death experiences in early 2006 (an accident, a medical error, and a complicated surgery). My body shows the scars of lessons learned and my mind is filled with ideas and solutions on how to improve the patient experience and outcomes.”
Article
Carlosrizo.com, 9 September 2008
Tagged: personalised medicine, semantic, social network and telemedicine
; posted on Tuesday, September 9th, 2008 at 8:11 pm
No Comments »
“It’s been a while since I’ve written but ran across this article titled ‘MyFamilyHealth is a great Web 2.0 health site’, while researching another topic and had to type something. First, I’m not a web2.0 expert like my esteemed collegue, LoriMac, - but I do cover security for our team.”
Article
Pete Silva, DevCentral, 14 August 2008
Tagged: privacy, security, social network and web 2.0
; posted on Friday, August 15th, 2008 at 8:15 am
No Comments »
“Two of the types of tools which are mentioned when people talk about the idea of “Health 2.0? are social networks and wikis.
Social networking sites are springing up fast and they all allow people suffering from the same disease to connect with each other for information sharing, telling their stories, giving each other emotional support and passing on tips and techniques which they’ve found helpful.”
Article
Bob Leckridge, Heroes not Zombies, 4 August 2008
Tagged: health 2.0, social network and wikipedia
; posted on Tuesday, August 5th, 2008 at 8:27 am
No Comments »
Abstract
The authors want to show the implication of interactive ICT on patient empowerment, through an overview of some of the key aspects - EHR, telecare and patient networks - all this within the context of recent Health 2.0 developments.
Definitions will be given of both Health 2.0 and Patient 2.0 Empowerment.
Article
Lodewijk Bos, Andy Marsh, Denis Carroll, Sanjeev Gupta, Mike Rees, to be published in the SWWS08 Proceedings, August 2008
Tagged: empowerment, health 2.0, networks, social network, telecare and web 2.0
; posted on Thursday, July 24th, 2008 at 10:35 am
No Comments »
“Intimate exchanges among people living with disease are part of an unconventional strategy HealthCentral is following in its attempt to become an online destination for health information. The company has unleashed dozens of independent Web sites about health topics — some broad like asthma and obesity, others far more narrow, such as teens living with diabetes — all with the hope of drawing people in search of help from others with similar problems.”
Article
Zachary A. Goldfarb, Washington Post, 21 July 2008
Tagged: health information, social network and web
; posted on Tuesday, July 22nd, 2008 at 9:14 am
1 Comment »
“Background: Patients who visit online support groups benefit in various ways. Results of our earlier study indicated that participation in online support groups had a profound effect on the participants’ feelings of “being empowered.” However, most studies of online patient support groups have focused on the members of these groups who actively contribute by sending postings (posters). Thus far, little is known about the impact for “lurkers” (ie, those who do not actively participate by sending postings).
Objective: In the present study, we explored if lurkers in online patient support groups profit to the same extent as posters do.
Methods: We searched the Internet with the search engine Google to identify all Dutch online support groups for patients with breast cancer, fibromyalgia, and arthritis. Invitations to complete an online survey were sent out by the owners of 19 groups. In the online questionnaire, we asked questions about demographic and health characteristics, use of and satisfaction with the online support group, empowering processes, and empowering outcomes. The online questionnaire was completed by 528 individuals, of which 109 (21%) identified themselves as lurkers.
Results: Lurkers (mean age 47 years) were slightly older than active participants (mean age 43 years, P = .002), had a shorter disease history (time since diagnosis 3.7 years vs 5.4 years, P = .001), and reported lower mental well-being (SF 12 subscore 37.7 vs 40.5, P = .004). No significant differences were found in other demographic variables. Posters indicated visiting the online support groups significantly more often for social reasons, such as curiosity about how other members were doing, to enjoy themselves, as a part of their daily routine (all P < .001), and because other members expected them to be there (P = .003). Lurkers and posters did not differ in their information-related reasons for visiting the online support group. Lurkers were significantly less satisfied with the online support group compared to posters (P < .001). With regard to empowering processes such as “exchanging information” and “finding recognition,” lurkers scored significantly lower than posters. However, lurkers did not differ significantly from posters with regard to most empowering outcomes, such as “being better informed,” “feeling more confident in the relationship with their physician,” “improved acceptance of the disease,” “feeling more confident about the treatment,” “enhanced self-esteem,” and “increased optimism and control.” The exception was “enhanced social well-being,” which scored significantly lower for lurkers compared to posters (P < .001).
Conclusion: Our study revealed that participation in an online support group had the same profound effect on lurkers’ self-reported feelings of being empowered in several areas as it had on posters. Apparently, reading in itself is sufficient to profit from participation in an online patient support group.”
Article
Cornelia F van Uden-Kraan; Constance HC Drossaert; Erik Taal; Erwin R Seydel; Mart AFJ van de Laar, J Med Internet Res 2008;10(2):e18, doi:10.2196/jmir.992
Tagged: social network
; posted on Monday, July 21st, 2008 at 8:23 am
No Comments »
“Web 2.0 technologies provide members of the health community - health professionals, health consumers, health carers and medical and health science students - with new and innovative ways to create, disseminate and share information both individually and collaboratively. This phenomenon has been termed Health 2.0. However, Health 2.0 is more than the application of these technologies in the health community; it is a movement that is beginning to transform the nature of health care, particularly in the US.
In this paper we present and explain four Web 2.0 technologies - blogs, wikis, podcasts, and social networks - and look at how these technologies are currently being used by health professionals. We consider the use of Web 2.0 technologies by health consumers to find and share information and to form support communities and then we explore a Web 2.0 pedagogical model that would connect medical and health science students - tomorrow’s health care professionals - with today’s health professionals and health consumers in order to enhance student education through providing collaborative learning opportunities together with ready access to multiple sources of information and expertise.
We conclude with some comments on what Web 2.0 might mean for the future of health care.”
Article
Iain Doherty, HealthCare & Informatics Review Online, 30 June 2008
Tagged: education, health 2.0, social network and web 2.0
; posted on Tuesday, July 15th, 2008 at 9:46 am
No Comments »
“The escalation in the incidence of chronic diseases has led to a significant number of people coping with conditions such as diabetes. The use of online communities to support patients in managing their condition is increasing as people seek information and emotional support from peer groups. This study examines the role of sociability in online diabetes communities and identifies key factors that contribute to the development of vibrant communities. It identifies key sociability factors that affect the commitment of owners and members to the community and enable people with diabetes to gain social networking benefits that enhance their ability to manage aspects of their condition. Early indications are that a vibrant sociable community can contribute to educating and encouraging people to maintain a higher degree of self management of their chronic disease.”
Article
Rosemary Stockdale, Kathryn Thompson, HealthCare & Informatics Review Online, 30 June 2008
Tagged: diabetes, online communities and social network
; posted on Tuesday, July 15th, 2008 at 9:38 am
No Comments »
“Social networking has come to the diabetes community in a big way with the launch of Diabetic Connect, a product of Alliance Health.
Alliance CEO Stead Burwell said it’s exciting that the demographics being drawn to Diabetic Connect are close to those of the actual diabetic population.”
Article
Dana Blankenhorn, ZDNet Healthcare, 14 July 2008
Tagged: diabetes and social network
; posted on Monday, July 14th, 2008 at 6:53 pm
No Comments »
“Is it ready? Is there something for everyone? No, Health 2.0 is in its infancy, as we recently found out. A few months ago, a friend and I plunged in. Using blogs, syndication and social networks similar to Facebook, we developed the ‘’New'’ Prostate Cancer InfoLink. Its resources unite doctors, patients, wives, ministers, government officials –anyone with an interest in prostate cancer.”
Article
Arnon Krongrad, Miami Herald, 6 July 2008
Tagged: health 2.0, oncology, platform and social network
; posted on Tuesday, July 8th, 2008 at 9:31 am
No Comments »
“Health Social Networking has seen a growth of online web sites to facilitate communications, health tools and shared medical experiences.
As many who know me, I have been building connections in social networks both “off line” and online for 40+ years. The old networks are from my childhood friends who I continue to be in contact usually on a daily basis (via e-mail) and in person a few times a year. I have developed at least 20 different and distinct networks ranging from friends, family, grade school, high school, college, graduate school, internships, professional associations, employers, Facebook, Linked In…”
Article
Mike Ryan, Trusted MD, 26 June 2008
Tagged: social network
; posted on Friday, June 27th, 2008 at 7:12 am
No Comments »
“Intel Corp.” said Tuesday it has launched the ConnectingForCare.com web site as an “online community” for the estimated 50 million or more family members and other caregivers in the United States.
The site is designed to help family caregivers, nurses, social workers and others both share information and give each other emotional support, “filling a void in today’s healthcare system,” said officials at Santa Clara-based Intel (NASDAQ: INTC). Intel developed the site in conjunction with the National Family Caregivers Association.”
Article
Chris Rauber, San Francisco Business Times, 17 June 2008
Tagged: social network
; posted on Wednesday, June 18th, 2008 at 9:44 pm
No Comments »
“Keith Schorsch is a busy boy. Not only did he write a much commented piece about Google Health and PHRs on this very station last week, but he also popped by last week to tell me about the new look for Trusera. Several of you saw Trusera launch at the Health 2.0 Conference last March. As of today they’ve removed the Beta tag, and have introduced a new look and new features.”
Article
Matthew Holt, Health 2.0, 16 June 2008
Tagged: health information, search and social network
; posted on Monday, June 16th, 2008 at 8:19 pm
No Comments »
“Internet developments that brought us sites such as Facebook, YouTube and Wikipedia are now set to revolutionise healthcare, according to a new research report from online news service and publisher, E-Health Insider.
Titled ‘Web 2.0 in the health Sector: Industry Review with a UK perspective’ the report concludes that new applications based on social health networks and content generated by health service users themselves - such as reviews of doctors and hospitals - will rapidly evolve to challenge existing healthcare systems and create new ways of delivering our healthcare.”
Article
Explain Health, 16 June 2008
Tagged: health 2.0, internet, social network and web 2.0
; posted on Monday, June 16th, 2008 at 10:45 am
No Comments »
“Intel has launched a new social network site intended to bring together carers, nurses and patients, enabling them to share experiences and information. It is also hoped the site will help overcome the feelings of isolation many carers experience.”
Article
eHealth Insider Primary Care, 13 June 2008
Tagged: social network
; posted on Monday, June 16th, 2008 at 10:03 am
No Comments »
All Articles (RSS2)
