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“From March, patients will be able to carry out email consultations with GPs and other clinicians using a Facebook-style tool called Communicator.
E-Health Insider has been told that Communicator will be launched as part of ambitious development plans for HealthSpace, the online organiser that gives patients access to their NHS Summary Care Record.”
Article
e-Health Insider, 18 November 2008
“The gap between the concept of the NHS Summary Care Record and the reality of implementing it will continue to be the focus of its evaluation programme.Patricia Greenhalgh, professor of primary care at University College London, which was commissioned to evaluate the SCR early adopters, told yesterday’s Healthcare Interoperability conference that the evaluation programme was looking at the technical assumptions versus the clinical realities.”
Article
e-health Insider, 31 October 2008
“A GP who is seeking publication of the Department of Health’s legal advice on plans for the Summary Care Record (SCR) has told the Information Commissioner (IC) he needs an urgent response to his request.
Dr Paul Thornton, a GP in Warwickshire, lodged a Freedom of Information Act appeal with the Information Commissioner in May after the DH refused to release its legal advice on the legal status of the health information stored as part of the SCR project.”
Article
e-Health Insider Primary Care, 6 October 2008
“The work is a qualitative study of attitudes of a group of patients representative of low health literacy, “potentially stigmatising conditions,” or difficulties in accessing health care regarding the National Health Service’ Shared Care Record (SCR), which appears similar to our Continuity of Care Record. It currently has medications, allergies, and adverse reactions, and is scheduled to include a minimum data set. Also discussed with the participants was the HealthSpace, which is a “personal health organizer available via the Internet,” so my guess is, similar to what we call a personal health record.”
Article
Ted Eytan MD, 2 October 2008
“The new consent to view model for the NHS Summary Care Record in England may also be applied to the detailed care records held by NHS organisations.
NHS Connecting for Health is to explore how the principle of ‘consent to view’ - announced as the new model for the SCR last week - could work when patients’ detailed care records are accessed.”
Article
e-Health Insider, 23 September 2008
“If one looks at the evolution of the physician’s office electronic medical record (EMR) in Canada, it is clear that the industry was spawned with an eye towards the administrative aspects of running a physician practice. It began with electronic billing which delivered the benefit of greater revenue and/or reduced costs; always a critical consideration for any business endeavor. It then evolved to include scheduling of patients as an extension of the billing process, or as a general office function.”
Article
Alan Brookstone (Eric Gombrich), CanadianEMR, 21 September 2008
“The NHS Care Records Board will today confirm that patients will be asked for permission to share their record at each clinical encounter.
In a much-anticipated move, the board has acted on the recommendations of the May 2008 UCL report on the first primary care trusts to adopt the Summary Care Record.”
Article
e-Health Insider, 18 September 2008
“The first London rollout of the new version of a key care records system, which went live in June at the Royal Free Hospital in Hampstead, has caused “chaos” according to a local newspaper report.”
Article
Leo King, Computerworld UK, 6 August 2008
“The implied consent model for the Summary Care Record (SCR) looks set to be scrapped in favour of a simpler consent model following a recommendation from Connecting for Health’s advisory group.
Implied consent looks likely to be replaced by a model based on ‘consent to view’, providing a simpler more intuitive way for patients to decide who accesses their record.”
Article
Fiona Barr, e-Health Insider, 30 July 2008
“A GP campaigning against the consent model for the NHS Care Records Service (NCRS) claims a European Court of Human Rights judgement reinforces his view that the NHS database is unlawful.”
Article
Diona Farr, e-Health Insider Primary Care, 25 July 2008
“The Summary Care Record (SCR) could be used to share end of life care plans and resuscitation details, according to the Department of Health.
Its newly-launched End of Life Care Strategy recommends that all end of life care providers have access to N3 and the SCR.”
Article
e-Health Insider Primary Care, 22 July 2008
“The Department of Health has convened a group to look at widening access to the NHS Care Records Service including representatives from patients, nurses and pharmacists, according to Prof Michael Thick, Connecting for Health’s chief clinical officer.”
Article
e-Health Insider Primary Care, 15 July 2008
“Patients ‘have a right’ to see record and suggest corrections, Darzi says.
Patients will have online access to their electronic health records within the next year, according to yesterday’’s review of the NHS by Lord Darzi.”
Article
Leo King, ComputerWorld UK, 1 July 2008
“GP representatives overwhelmingly backed a motion to call a halt to development of the NHS Care Records Service at the BMA’s annual Local Medical Committees conference on Friday.
LMC representatives backed a motion expressing no confidence in the government’s ability to store electronic patient records safely.”
Article
e-Health Insider Primary Care, 16 June 2008
“Objective To document the views of patients and the public towards the summary care record (SCR, a centrally stored medical record drawn from the general practice record) and HealthSpace (a personal health organiser accessible through the internet from which people can view their SCR), with a particular focus on those with low health literacy, potentially stigmatising conditions, or difficulties accessing health care.
Design 103 semistructured individual interviews and seven focus groups.
Setting Three early adopter primary care trusts in England where the SCR and HealthSpace are being piloted. All were in areas of relative socioeconomic deprivation.
Participants Individual participants were recruited from general practice surgeries, walk-in centres, out of hours centres, and accident and emergency departments. Participants in focus groups were recruited through voluntary sector organisations; they comprised advocates of vulnerable groups and advocates of people who speak limited English; people with HIV; users of mental health services; young adults; elderly people; and participants of a drug rehabilitation programme.
Methods Participants were asked if they had received information about the SCR and HealthSpace and about their views on shared electronic records in different circumstances.
Results Most people were not aware of the SCR or HealthSpace and did not recall receiving information about it. They saw both benefits and drawbacks to having an SCR and described a process of weighing the former against the latter when making their personal choice. Key factors influencing this choice included the nature of any illness (especially whether it was likely to lead to emergency care needs); past and present experience of healthcare and government surveillance; the person’s level of engagement and health literacy; and their trust and confidence in the primary healthcare team and the wider NHS. Overall, people with stigmatising illness were more positive about the SCR than people who claimed to speak for “vulnerable groups.” Misconceptions about the SCR were common, especially confusion about what data it contained and who would have access to it. Most people were not interested in recording their medical data or accessing their SCR via HealthSpace, but some saw the potential for this new technology to support self management and lay care for those with chronic illness.
Conclusion Despite an extensive information programme in early adopter sites, the public remains unclear about current policy on shared electronic records, though most people view these as a positive development. The “implied consent” model for creating and accessing a person’s SCR should be revisited, perhaps in favour of “consent to view” at the point of access.”
Article
Trisha Greenhalgh, Gary W Wood, Tanja Bratan, Katja Stramer, Susan Hinder, BMJ, doi:10.1136/bmj.a114 (published 29 May 2008)
“An unachievable timetable for electronic patient records has damaged confidence in the National Programme for IT, according to the National Audit Office.”
Article
ZDNet.co.uk, 19 May 2008
“Dorset Primary Care Trust has announced staff at six more local GP practices will start to use the NHS Summary Care Record this week.
The six GP practices – Milton Abbas, Gillingham, Newland in Sherborne, Cranborne, Swanage and Wool, will begin work on switching to the SCR this week. The Dorset practices form part of the fifth wave of surgeries to switch on the system as part of the Connecting for Health project.”
Article
e-Health Insider Primary Care, 20 May 2008
Dr. Manpreet Pujara, GP clinical lead of the NHS, will address the ICMCC Event during the keynote session on Tuesday June 10. Dr. Pujara will speak about Summary Care Record and Healthspace.
Tagged: summary care records ; posted on Friday, May 16th, 2008 at 9:38 am“The clinical director for the Summary Care Record has called for a period of reflection in the wake of the publication of the independent evaluation of the SCR.
Dr Gillian Braunold, clinical director for the SCR and HealthSpace, said that while the SCR team was keen “to try and get on with this” it was also important to carefully consider all the issues that had been raised.”
Article
e-Health Insider Primary Care, 12 May 2008
“A UCL (University College London) research team, led by London GP Professor Trisha Greenhalgh, has published its independent evaluation of the first year of the Summary Care Record (SCR) programme. The team found that although the SCR offers real benefits for treating patients in emergency and unscheduled care settings, the ‘”complicated” technical system needs to be refined before being rolled out. Nevertheless, both NHS staff and patients were largely positive or amenable to the programme, with most people valuing the benefits of instant access to medical records over the small risk of data loss or breach.
The SCR programme is an initiative by the English Department of Health to place a summary of key medical details (medication, allergies, known adverse reactions) of every NHS patient on a central database, accessible by NHS staff via a secure virtual network. It is currently being introduced in a number of ‘Early Adopter’ sites across England, of which the UCL team studied four. The year-long evaluation covered areas including: usability, usage and functionality of the SCR; impact and benefits of the SCR; patient access to their own SCR; evaluation of the Public Information Programme and evaluation of the consent/dissent model.
The evaluation team conducted extensive fieldwork within the early adopter Primary Care Trusts (PCTs), immersing themselves in the reality of implementation and usage of the SCR on the ground. The views and experiences of GPs, nurses, patients and the public, practice managers and other clinical and administrative staff using the SCR were captured.”
Report
Greenhalgh T, Stramer K, Bratan T, Byrne E, Russell J, Mohammad Y, Wood G, Hinder S, UCL, 6 May 2008
“A UCL (University College London) research team, led by London GP Professor Trisha Greenhalgh, has published its independent evaluation of the first year of the Summary Care Record (SCR) programme. The team found that although the SCR offers real benefits for treating patients in emergency and unscheduled care settings, the “complicated” technical system needs to be refined before being rolled out. Nevertheless, both NHS staff and patients were largely positive or amenable to the programme, with most people valuing the benefits of instant access to medical records over the small risk of data loss or breach.”
Article
eHealthNews.eu, 7 May 2008
“The NHS, through Connecting for Health, is introducing two types of online health record for everybody in England—the summary care record and HealthSpace. The summary care record is being introduced in five “early adopter” pilot sites. An independent evaluation of this implementation was released this week. Delays in deployment, with summary care records in only two sites to date, mean that the evaluation cannot provide the concrete answers that many people were hoping to see regarding consent, patient acceptance, and clinical benefits.”
Abstract
Michael R Kidd, BMJ, doi:10.1136/bmj.39567.550301.80 (published 6 May 2008)
“The independent evaluation of the Summary Care Record has recommended an urgent review of its implied consent model and questioned whether a national system should be rejected in favour of a series of linked smaller systems.”
Article
e-Health Insider, 6 May 2008
“The pace of implementation of the Summary Care Record (SCR) looks likely to be slower than originally planned after it has emerged that only two PCTs have so far got records available to view over the Spine.
The first evaluation of the SCR, due to be published next month, is also expected to recommend a cautious approach to rollout and CfH has now commissioned a further two-year evaluation. However, CfH has denied that the additional evaluation will affect the timetable for national roll-out.”
Article
e-Health Insider Primary Care, 22 April 2008
“The government has admitted much more work has to be done on patient security and confidentiality concerns, associated with allowing pharmacists access to patient Summary Care Records (SCRs).”
Article
Leo King, Computerworld UK, 11 April 2008
“The government has announced it will investigate how community pharmacy access to the NHS Care Records Service (CRS) could be achieved.
The news comes despite BMA concerns about the impact on patient confidentiality of extending access to an additional professional group working in the commercial sector.”
Article
e-Health Insider Primary Care, 7 April 2008
“Northern Ireland health minister, Michael McGimpsey, has launched the Northern Ireland Emergency Care Record - a new emergency care project for patients attending A&E and out-of-hours services.
The Southern Health and Social Care Trust will be the first in Northern Ireland to introduce the NI Emergency Care Record (NIECR).”
Article
e-Health Insider Primary Care, 3 April 2008
“HealthSpace, the NHS’s own personal health record project, has been voted the most exciting part of the NHS national IT programme.”
Article
e-Health Insider, 19 March 2008
“Personal experience convinced a new national clinical lead (NCL) for Connecting for Health that electronic records were an important future development.”
Article
e-Health Insider, 17 March 2008
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I agree with Jen that there’s patient “influence” but Lodewijk’s comment still...
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